CLL Support Association
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Dr. Pagel on the Risks of Frontline Idelalisib and some upcoming meetings and support groups


Very apropos to the recent withdrawal of trials of idelalisib frontline, this week in the 2015 Conference Coverage section of the website we have posted an interview with Dr. John Pagel from Seattle while we were at the American Society of Hematology annual meeting in December 2015 in Orlando. We discussed the data from the clinical trial that studied frontline use of idelalisib in CLL. You can see a summary, as well as read about more recent updates and view our interview here. []

In our What’s New section, we also have information of the idelalisib trial withdrawal which was more about deaths and infections than the liver issues that Dr. Pagel discusses.

We’re happy to announce the first CLL Society Support and Education Network patient and caregiver support meeting will be held at City of Hope on March 21st at 7 PM. For more information, view the flyer. [] There is no charge to attend. I will be there.

We are also forming a new patient and caregiver support meeting in Charlotte, NC. If you are interested, please complete the online survey to indicate your preferences for days and times. [] We look forward to getting started.

There are a couple of educational meetings this week:

March 17th at 6 PM in Chicago, IL: The Lymphoma Research Foundation will be hosting Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as part of their Ask the Doctor series.

March 19th at 8 AM: The Southern California Blood Cancer Conference sponsored by the Leukemia and Lymphoma Society will be held at the Anaheim Marriott. You can find more information and register here. I will be speaking at this meeting and The CLL Society will have an exhibit table at the conference. We look forward to seeing you there. There is no charge to attend.

You can get information on this and more meetings here:

In the meantime….

Stay strong.

We are all in this together.

Brian Koffman, MD

Volunteer Medical Director of the CLL Society

2 Replies

Thanks for your updates as a patient & doctor. Many of us follow your blog with great interest & also CLL Society. Funny how we patients become emotionally attached to other patients & how the research doctors have become our "rock stars."


(SLL diagnosis since 2013 - on ibrutinib now for 23 months)


Agreed. Rock on Dr K!



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