Hello, thank you for this invaluable site. I've had CLL (without knowing) since 2004. About a year and a half ago i was finally diagnosed. I have progressed to Stage 1 now, with some physical problems that no other CLLer has! I've been pretty badly fatigues for a year. Several months ago i started sleeping day and night for several weeks--with a few minutes out for basic necessities. (And i had always been a bad sleeper.) I called my oncologist who was not concerned. Then, and now, i sleep until eleven or twelve noon. Every day. I have no choice . I also now have no life--a few hours in early afternoon, and too tired to move, or think.
Sorry to whine, but i'm scared. Is it true that only chemotherapy would cure this fatigue? My numbers are nowhere near to indicating treatment, so i am stuck between nowhere and nowhere. I had hoped for a reasonable life until the inevitable treatment, but this is not a life.
I love this site, and learning so much from all you, who are braver--and more alert!--than i am.
Thank you all, with kindest regards,