Just found out I have CLL and it's at stage zero.

[Chickyfluff]

I'm at a total loss on what I will be dealing with. I've had ET For about 9 years, but my hematologist says this is not connected. I have UTI'S about every 4-8 weeks. Can they be the result of CLL's lack of immunity?

[Dodge245]

Same as you, I was just diagnosed in February waiting results from CT scan and appointment with oncologist.

[Chickyfluff in reply to Dodge245]

I go back to the doctor this coming Monday and I have a list of questions. When he first told me I have CLL, I zoned in on the word leukemia and didn’t really hear much of what he said after that. I just nodded my head like I understood what he was saying. Hopefully, I will get a better grasp on what to expect.

[Dodge245 in reply to Chickyfluff]

Yes, from my bone marrow biopsy he said we found you have CLL. I never heard of it leukemia yes. So I am in the beginning of learning stage. Wishing you all the best. I'm learning alot on the CLL society site, about genetic marker's, predicting future outcomes, best treatment's etc. I don't even know if he even did these things. Seems there is specialist treating only CLL patients having specific expertise. I would prepare a list of questions to ask for the answers you and I deserve :-)I have a follow up Wednesday for my results. 🙏

[Chickyfluff in reply to Dodge245]

Hopefully you will get answers to your questions. As my follow up is Monday, I will be asking questions also.

[SofiaDeo]

Chickyfluff and dodge245, please note this is an *inactive* forum. You probably won't get a lot of responses. Come on over to "CLL Support"! Even though it is UK based, we have people from all over the world and a lot of US people. It's very active.

[Chickyfluff in reply to SofiaDeo]

Thanks!

[Dodge245 in reply to SofiaDeo]

Sure thing 👍😊