New CLL: 70 Year old male.  Diagnosed in... - CLL America Support

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New CLL

Songster profile image
5 Replies

70 Year old male.  Diagnosed in Jan16.  11q del, unmutated.  Stage 1, watch and wait but on a short leash.   Main complication is drug I take for RA (Simponi).  Feeling fine.   

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Songster profile image
Songster
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5 Replies
tclementi profile image
tclementi

So glad to hear that! Thanks for posting and being part of our community here on Health Unlocked. 

Justasheet1 profile image
Justasheet1

Welcome Songster. I wish it wasn't so but we both are on this forum. I too have your markers but everyone is different. 

Soak all the knowledge in from here and ask questions or vent. 

Best advice I can give is find a CLL expert and let them look you over. 

Jeff 

tclementi profile image
tclementi in reply toJustasheet1

Great advice Jeff! Thanks for commenting and sharing your experience! 

Jackiemoss profile image
Jackiemoss

I, too, had RA when I was diagnosed with CLL 25 years ago (I'm 66). My RA went into remission at about the same time CLL appeared. I agree with Jeff. Find an expert in CLL. I go to a great oncologist but when he heard about ibrutinib, he sent me to Michael Keating at MD Anderson for a clinical trial. He is one of several CLL experts you will see on Patient Power videos. Wishing you good health!

Songster profile image
Songster in reply toJackiemoss

It was because of regular blood work done for RA that my CLL was diagnosed.   I have seen Dr. Bartlett at Siteman Cancer Center in St. Louis.  She is very concerned with the fact that I take self injections of Simponi  for RA.  That drug has minimized my RA flares for the past six years.  I will see  both my oncologist and rheumatologist in the next 3 weeks. They have discussed my dilemma and sooner or later I will have to stop Simponi.  My overall health is good, have not even had so much as a cold in the last 6 years.  

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