Hepatomegaly and ascites in BA

[Matd]

Hi everyone, my daughter was diagnosed with BA at 3months and the Dr said was not comfortable to do kasai as success rate is low above 3months and solution is transplant. Now she's 9months on the waiting list for transplant. Thank you everyone for the information you post from your experiences made me to calm down. This condition is rare in our country I never knew of it before my daughter was diagnosed with it.

[Hidden]

Hi, I don't know where you live but you can go on the CLDF website and download information for free. childliverdisease.org/infor...

I do hope your daughter receives her transplant soon.

With very best wishes -Jacquie

[Matd in reply to Hidden]

Thank you Jacquie appreciate that you guys are doing a great job keep it up. I'm in Botswana

[Pencek]

Hope your daughter got the gifted liver and is doing ok.

[Matd in reply to Pencek]

Hi! We didn't find a donor daddy and i had different blood groups as the girl and she went to rest in June

[Pencek in reply to Matd]

I am so very sorry to hear this. May she Rest In Peace. No words are enough for this loss!