Hi I just wanted to see if youd like to join our support group on Facebook
We have some really amazing members with valuable experience and advice to offer
If you would like to meet other families with very rare conditions and are not in the UK it's possible that I can connect you to another parent who maybe able to offer some help and advice feel free to comment send me a private message x
Hi I am new to this''' I would like to talk to some people who are goin or been through same situation as I am goin through now.
Rifampicin 
Portal hypertension, enlarged spleen and liver damage 
