RALFS

[Danzidan]

So we have waited so long for a diagnoses and nows the time we have it for my 4 year old son, It's called recurrent acute liver failure short, there's only 12 of them in the world and I wondered if any of you are on here! Long shot I know! X

[McSousa]

Hello. Sorry to hear about your poorly boy. I have no experience of this particular liver disease but am sure that I have read about someone with a similar thing on the "Liver Mums" (which also accepts dads) Facebook page. I'll ask there and will be in touch, unless you decide to join that group too. Hope you're doing ok. Keep in touch. x

[Danzidan in reply to McSousa]

I'm on there it's prob from me that uv read it I popped it on today!

[McSousa in reply to Danzidan]

It was before today- weeks ago..... Hmmm!