He went from 4.5 stone down to about 3stone in 6 months and has just been release from the RVI newcastle after having a really bad flare up. Can anyone shed a little light on what we should expect and future things to come. He's also just started a 3 months course of steroids alongside his normal medication, what side affects should I watch out for. Thanks we're feeling very confused! (and a bit lost)
My 9yr old son was diagnosed with scl... - Children's Liver ...
My 9yr old son was diagnosed with sclerosing cholangitis and ulcerative cholangitis last month and we don't know what quite to expect.
Written by
LizNatt
To view profiles and participate in discussions please or .
Read more about...
Not what you're looking for?
You may also like...
Hi my son was diagnosed with auto immune liver disease at 3 years old but kept it under control with tablets until he turned 17 we was put
On the transplant list but he's now 19 and at a critical stage 2 years on we are still waiting on a...
Hi my son was diagnosed with autu immune liver disease at 3 years old and kept it under control with tblets but 2 years ago at the age of
17 was put on the liver transplant list its now 2 years on and we are still waiting for a liver to...
Bad colour poop .
Hi everyone
My 9 months old with alagille syndrome has very bad colour poop for last three days,...
biliary atresia
Hello everyone,my daughter is 6 months old,has biliary atresia,awaiting liver biopsy results ,what...
Allagille syndrome
My son is 3,5 months diagnose with this waiting for final confirmation in a way I am relieved that...