My 9yr old son was diagnosed with sclerosing cholangitis and ulcerative cholangitis last month and we don't know what quite to expect.

[LizNatt]

He went from 4.5 stone down to about 3stone in 6 months and has just been release from the RVI newcastle after having a really bad flare up. Can anyone shed a little light on what we should expect and future things to come. He's also just started a 3 months course of steroids alongside his normal medication, what side affects should I watch out for. Thanks we're feeling very confused! (and a bit lost)