Eye : Hello I am writing here to ask if... - Changing Faces

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Eyeofthesarcoma profile image
8 Replies

Hello I am writing here to ask if anyone has a hole it the skin to there eye socket. My eye was removed because of cancer then the effects of radiation have caused a hole I can breathe though it! I would love to talk to anyone, but would like to know someone else that’s had the skin issue xx

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Eyeofthesarcoma profile image
Eyeofthesarcoma
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8 Replies

Hello there and welcome to the Changing Faces community! Thank you for your post, it’s great that you want to speak with people here. Hopefully you will find others in the community to connect with. Perhaps you’d like to share more about the things you want to talk about with others as a way to generate conversation.

Tiffany

younique profile image
younique

Hi Eyeofthesarcoma! Welcome to the forum, it's great you're here.

Eyeofthesarcoma profile image
Eyeofthesarcoma in reply to younique

Thank you, I am on Instagram, TikTok, Facebook Twitter, war on cancer app but so far have not found anyone else with a hole! However it doesn’t mean they are not out there! I learned about this forum from changing faces instagram! It’s wonderful to be here I’ve not explored fully but it’s been a big eye opener for me because there are so many on here with other conditions that are not cancer. I guess it shows how we look for help/ answers within our bubble but there is so many women I can relate to on here.

Thank you for messaging. I look forward to exploring more! Xxx

sunshine1184 profile image
sunshine1184

Hi there i had cancer when i was one years old and i am scarred down my left cheek. Xx

Eyeofthesarcoma profile image
Eyeofthesarcoma in reply to sunshine1184

Hello xx

Themenz profile image
Themenz

Hi, I had my eye removed 7 years ago and because of the RT constructive surgery hasn’t worked a d I’ve had over 20 surgeries. I’m left with a rather large hike and I wear a prosthetic over it with an eye patch attached. My cancer was stage 4 , ethmoid sinus cancer but although I on,y has a 2o% chance of surviving 5 years I’m still here!

in reply to Themenz

Hi Themenz. Thank you for your post and for sharing your experiences here. Over 20 surgeries is a lot to go through but like you said you’re still here and that is something to be glad about! It’s great that you've found our community and are connecting with others. Best wishes to you!

Tiffany

Eyeofthesarcoma profile image
Eyeofthesarcoma

Im sorry you have had so many surgeries but I’m glad you are still here! I have met some people because I have been active online but I’ve not met anyone with the hole, I am due to have surgery to close the hole it will be a flap - london realised a paper last month saying that they have had success with a flap used on mouth cancer so my dr wants to try that xxx

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