Recently diagnosed with Cavernoma

Hello, I have been diagnosed with cavernoma within the right cerebellar hemisphere.

I fell on my head while running, so I went to hospital , had an MRI, they told me I had a bleeding (hemosiderin staining) measuring about 7,5mm in diameter.

I sent my MRI scans to a recommended neurologist (was away) he said the bleeding was not from the cavernoma but from the fall and that the cavernoma in my state is minor. I have not gone and seen him personally yet.

I always had difficulty breathing years ago during running, and recently I feel it more, I also feel that my legs are stiff and my running isnt as good.

I am planning on seeing the neurlogist in person to find out more information about the risks, etc.. but at the same time I dont want to know. He said I could run normally but lately I have been having headaches

My question is, does anybody know if it is safe to continue running? And is it worth to think about having it operated on or are the risks higher than living with it?

Thank you,

2 Replies

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  • Hi - you would be better asking this question on the Cavernoma Alliance UK secret Facebook page where there are many in similar situations. If you go to cavernoma.org.uk/ and apply to become a member (it's free), then they will add you to the Facebook page where there are lots of us 🙂

  • Thank you, I will do 🙂

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