thoracic cavernoma: hi, i have a... - Cavernoma Allianc...

Cavernoma Alliance UK

439 members119 posts

thoracic cavernoma

cath2525 profile image
1 Reply

hi, i have a thoracic cavernoma, had a bleed 7 years ago now, still having trouble walking and numbness, reluctant to have op as been told its very high risk. has anyone ever had surgery for this?

Written by
cath2525 profile image
cath2525
To view profiles and participate in discussions please or .
Read more about...
1 Reply
CAUKcommunity16 profile image
CAUKcommunity16Partner

Hello Cath2525,

Cavernoma Alliance UK (CAUK), has over 50 members with spinal cavernoma. If you would like to connect with some of these members, please consider joining CAUK on, cavernoma.org.uk/membership...

CAUK is free to join and offers members, support, information, advice and research.

Please do contact us on, community@cavernoma.org.uk or 01305 213876, we will be more than happy to talk.

Best wishes,

Angie

You may also like...

Recently diagnosed brainstem cavernoma

I have double vision and numbness down the left hand side. I have had a recent bleed in the brain...

Cavernoma and headaches

My 42 year old daughter has been having headaches on and off since her teens, we have always been...

Living with Cavernomas

Hi I have multiple Cavernomas the one in my brain stem has had quite a few bleeds over the years it...

Right Brainstem Cavernoma

I am 26 years of age, i first found out that i had a cavernoma when i was 16, due to the fact that i

Feeling rather isolated as a cavernoma victim in Guernsey

i have a brain stem cavernoma but don't know any other patients here in Guernsey. It would be great...