Cavernoma Alliance UK is a charity that supports people affected by cavernoma. We can put you in touch with other people affected by Cavernoma through meetings, social media and many other methods of communication. Joining CAUK can give members the opportunity to share information and experiences, along with creating friendships from a mutual understanding.
Join today, it's FREE! cavernoma.org.uk/membership...
Were you misdiagnosed by your GP in your initial consultation?
I have been offered gamma surgery for my brain stem cavernoma. It has bled once. Has anyone had this treatment?