Looks like I’m back on here again not good ... - Care Community

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Looks like I’m back on here again not good news

Afrohair profile image
5 Replies

Well I’m back to give an update mum seems ok other than feeling like she needs a security camera at home I’ve not really been able to see her much with this virus and worries of catching it as she happily has every Tom dick and Harry come round to her house though she’s not supposed to she won’t live worrying about this virus so I let her be and just have her wear a mask near me

Anyway by the by the bad news is my auntie (mums sister ) just been diagnosed with early dementia well wondering how well off I’m going to be at that age now I already forget stuff at 35 mums sister is only in her 50s as well she has a different type of early onset and it isn’t vascular so now I’m wondering who’s going to help me when time comes I don’t know I’m trying to just think of the present as I can’t control the future but the worries are in the back of my mind 2 close family members of mine have dementia in their early lives I don’t have anyone else just my partner and kids brother has been poorly but dosent live with me he has had a rare tumour everyone is sick it’s making me think we should enjoy things while we can not take too much for granted anyway hope you are all well xx

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Afrohair profile image
Afrohair
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5 Replies
sassy59 profile image
sassy59

It’s good to see you Afrohair and it does seem as if your mum is doing ok. Sorry to hear about your aunt though, that’s very sad.

Being surrounded by illness is scary but there’s a strong possibility you won’t get dementia. Let’s hope not. I hope your brother will recover.

Thinking of you all at such a difficult time. Xxxx

Hi Afrohair, good to hear from you again, but so sorry it's because the news isn't too good and it's made you anxious.

You've said the sensible thing about enjoying each day as it comes. Try not to think of the future in a big block of time. I know those unhappy thoughts creep into our heads, but it's not a given that you too will suffer the same fate as your mum and other family, and it would be horrible to spend half of your life worrying and being anxious, if it then doesn't come to pass.

Have you thought of maybe having a chat with a GP about this worry? They could probably give you an honest indication of how likely it is that your life could take a similar turn.

But try to enjoy the life ahead of you, taking each day for what it is. In another few years there may be more medical science that enables more effective treatment or even a cure so don't let this weigh heavily on you. And your children will grow and will probably step up to the plate to help you later in life. We can't always rely on that, or expect it, but it's seldom there's no-one there to help when the need arises.

Concerning your mum, you seem to be managing with her very well, which I'm pleased to hear. You have things worked out very nicely for the time being! 👍😊🙏

katieoxo60 profile image
katieoxo60

That sounds a good idea Afrohair, live life to the full if possible as no one knows what tommorrow holds and speaking from experience community care is based on having family to help or lots of money to pay for taxis & health care. Glad your mum is coping she seems to have the attitude of what will be will be. Remember the person who has dementia is not suffering you the carer is. I am sorry to hear another member of your family has early signs of Alzeheimers as it is called. Take care of yourself and find time if possible for your own needs. Enjoy your day.

Jennymary profile image
Jennymary

I can understand your worries over dementia, we lost mum's aunt, my great aunt, and my mum with dementia, that line of the family have eye problems which I've inherited, and I get times when I wonder about dementia, I already have several health issues so I try not to think to much about it

Afrohair profile image
Afrohair in reply toJennymary

I’m same also inherited eye problems and I’m only 35 my mum is blind in one eye Aunty just has vision trouble

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