If your child has had tongue reduction surgery... - BWS Support

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If your child has had tongue reduction surgery, which hospital/surgeon performed the surgery?

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daisyduckBWS Support
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daisyduck
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daisyduck profile image
daisyduckBWS Support

We had Mr Hartley in ENT dept at GOSH for the first two, and Mr Dunaway for the next two operations.

Carladrew profile image
Carladrew

We had mr hodgkinson at the rvi in newcastle

Claircharlton profile image
Claircharlton in reply toCarladrew

Hi hope you don't mind me replying to this comment, my daughter has bws and has had a tongue reduction on 19/11 mr hodgkinson at rvi also did my daughters, how was recovery? My daughter is still recovering she is 10 months :) Clair

Songbird63 profile image
Songbird63AdministratorBWS Support

We had Mr Dunaway at GOSH

familyfour profile image
familyfour

We had mr dunaway at the Portland London

daisyduck profile image
daisyduckBWS Support

Mr Dunaway performed Amelia's second op at Portland Hospital too.

kellybear profile image
kellybear

Mr Chris Hill at the Royal Victoria Hospital for Sick Children in Belfast

Bond profile image
Bond

Hi. I'm an Englishman living in Norway. My daughter (Helene 16 months) has BWS and an enlarged tongue is one of her symptoms. So far, tongue reduction surgery has not even been discussed by her physicians here in Norway. Aside from the risks associated with all surgery, what additional problems should we be aware of, should we decide that this operation is best for her? Is there an optimum age at which it should be done? How much does it effect her language development? What is the general recovery period, post op?

Songbird63 profile image
Songbird63AdministratorBWS Support in reply toBond

Have a look at our support group website bws-support.org.uk. The info on there about macroglossia is written by GOSH craniofacial team. There is info about the op etc and contact of who you need to talk to for more info or a referral. Generally it is recommended the op is done under 2 years of age. We spent 2 nights post op at GOSH and he was eating normally within a couple of weeks. His speech is perfect. GOSH have undertaken research into the effect of TR surgery on speech...again this can be accessed from website.

ramireza profile image
ramireza

We are sopposed to have TR in february with mr Dunnaway at GOSH. We live in Sweden and I have worked hard to convince that TR is the best for my son. Now they are actually comming with me to GOSH for educational purposes and hopefully it will help other kids. And hopefully I have made the right descicion for my son.

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