I am a 68 year old male in the U.S. I had macroglassia as a newborn along with the strawberry forehead mark and a hernia. The macroglassia was surgically corrected at age 15 months and the hernia at 9 years. The forehead mark never shows unless I get embarrassed or tired. I never knew there were others similarly affected until I did a Google search for "enlarged tongue" which resulted in several sites addressing BWS. I am tall (6'4") and, at least according to testing, above average in intellect. It is good to know there are others similar to me. At the time of my birth there were no doctors who could advise my parents as to the cause of my problem, but now I know. Thanks for this site.
Just Found Out About BWS: I am a 68 year old... - BWS Support
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