Have a few questions that haven't been answered satisfactory by any of our physicians and hope some one with more knowledge could help! My daughter has been diagnosed at birth with bws. She was born with a enlarged liver and tongue. After visiting with a genetics and trying to educate her physician from what I have researched on line she had her second ultrasound which they have also noticed her spleen was enlarged. My questions are this..will these organs continue to grow with her? What is the effects of having enlarged organs?( tried to research this on line and never a clear answer!). I will probably think of many more questions to ask this group later on but for now anyone that could help with clear answers would be great! Thank you!