I'm new to the group. My son is 15 now and he's having a lot of back pain. He hasn't really presented with any issues from BWS since he was a little boy. After we finished the ultrasounds, I stopped obsessing and worrying so much. Now that he's entered adolescence and is having a huge growth spurt, he's been diagnosed with Kyphosis, which is a fancy way of saying he has a hunchback. At his school physical today, I noticed his neck and shoulder on one side are dramatically different, more bulk, more muscle, higher than the other, and definitely looking like hemitrophy or whatever that uneven growth is called. This was never noticeable before, in other words, appears to be new, and appears to be related to puberty. Two doctors said we shouldn't do anything about it, but as is usual, neither one knew about BWS until I explained it to them. Has anyone out there with adolescent BWS kids also seen kyphosis? I've read that scoliosis is often associated with BSW, but couldn't find kyphosis mentioned anywhere? Any other back and spine issues, and any other experiences with profound growth issues at adolescence that I should expect? Also, is there any advice on helping a teen with BWS deal with self image?
Thanks for your help.