Help???: Hya I am just wonder if you could give... - BWS Support

BWS Support

708 members196 posts

Help???

cfh25 profile image
2 Replies

Hya I am just wonder if you could give me advise on a rally sariouse matter my boy who is 5 month old has bws he also has been diagnosed with liver tumors (hytoplasoma) he also has other problems such as kidney problems and hart problems he tried a low does kemo which dint work well and then only shrunk one of the tumors a little bit but the docs think he woldent hadel the higher does of kemo he also will need a liver transplant but until they see the tumors srink they won't give the liver transplant which only means my baby will not be cured have eny other baby's had problems like this as I will have to decide what to do about kemo and curing him and things can eny one advise or help

Written by
cfh25 profile image
cfh25
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Songbird63 profile image
Songbird63AdministratorBWS Support

So sorry to hear of your babies problems. Are you in the UK? If you are I assume you are being treated in a specialist children's cancer unit? If so then the advice you are getting from the specialist will be what they believe is the best for your child. If you are not happy with what they are saying you have the right to ask for a second opinion from another children's cancer unit.

Wishing you and your baby all the very best.

heny-benny profile image
heny-benny in reply to Songbird63

Thnka n yh It seems to be all they can do

You may also like...

Help...I need advice.

and she was a week late. She has no other characteristics of this BWS. I have never heard of it...

My daughter and BWS & Paediatricians in North England

conclusion one way or the other as soon as possible just in case my eldest daughter also has the...

Will tongues of babies with BWS get bigger as they grow?

Hi I'm Josh, my daughter has BWS. She was born with omphalocele, has large tongue, ear crease, and...

Behaviors/Emotional Needs with BWS

son. My son is 5 years old and has BWS. He was diagnosed at birth. He has had leg flare ups and...

Hi new here from England!

waiting genetic blood tests back to see if he has BWS. He has already been diagnosed with...