BWS Support
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Has anyone else had a hepatablastoma and have they had anymore cancer incidents since then or other symptoms?

My daughter is 19 months old and was officially diagnosis with BWS on July 3, 2014. In December 22, 2013, she was also diagnosis with hepatablastoma. We did 4 rounds of chemotherapy and then had to do a liver transplant. We are currently in round 5 of chemotherapy to finish off the protocol for hepatblastomas. I am just so scared that something else is going to blow up in my face. Just looking for reassurance.

1 Reply

Hi my son was diagnosed with hepatoblastoma at 6 months old. He had 4 rounds of chemo, surgery then 2 more rounds. He is 3 now and still clear. Good luck x


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