Has anyone else had a hepatablastoma and have... - BWS Support

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Has anyone else had a hepatablastoma and have they had anymore cancer incidents since then or other symptoms?

Delilah1217 profile image
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My daughter is 19 months old and was officially diagnosis with BWS on July 3, 2014. In December 22, 2013, she was also diagnosis with hepatablastoma. We did 4 rounds of chemotherapy and then had to do a liver transplant. We are currently in round 5 of chemotherapy to finish off the protocol for hepatblastomas. I am just so scared that something else is going to blow up in my face. Just looking for reassurance.

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Delilah1217
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Carladrew profile image
Carladrew

Hi my son was diagnosed with hepatoblastoma at 6 months old. He had 4 rounds of chemo, surgery then 2 more rounds. He is 3 now and still clear. Good luck x

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