My daughter is 19 months old and was officially diagnosis with BWS on July 3, 2014. In December 22, 2013, she was also diagnosis with hepatablastoma. We did 4 rounds of chemotherapy and then had to do a liver transplant. We are currently in round 5 of chemotherapy to finish off the protocol for hepatblastomas. I am just so scared that something else is going to blow up in my face. Just looking for reassurance.
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