Sleeping with varying T sounds: Hello all…..hope... - Tinnitus UK

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Sleeping with varying T sounds

Bowler200 profile image
11 Replies

Hello all…..hope you all ok.

Like most of you good people I have been unable to sleep as well as I was before my spike in late October and although sleeping a little better than I was i am still quite prone to waking up a lot( unless I’m really tired.

I am just wondering if any of you have tried melatonin and how did it pan out.

My sister has recommended I give it a try and I’ve emailed my GP to see what she thinks….

I would welcome your thoughts or experiences on this subject …thanks

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Bowler200 profile image
Bowler200
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11 Replies
Happyrosie profile image
Happyrosie

Hello Bowler200.This is what the British Tinnitus Association says:

“The evidence levels for melatonin supplementation treating tinnitus are low. Melatonin should only be obtained via prescription and taken under the supervision of a medical professional.

Melatonin is only available on prescription in the UK and licensed only for treating insomnia in the over 55’s”.

Also, last time I was in the US I bought some melatonin to help with adjusting sleep patterns after jet lag. It had no effect on my sleep, and no effect on my tinnitus.

Bowler200 profile image
Bowler200 in reply to Happyrosie

Hi happyrosie…..thanks for your reply…..I’m sure that it will not help my T either way but I was only interested in giving it a try for getting off to sleep etc……I’ve had a good week by the standards and hopefully I,ll get enough sleep just so as I can function at work without feeling tired……my T at the moment can be soft in the evenings and at night but loud when I wake up……like us all I’ve just got to soldier on and accept it….it’s early days I know but I just get through each day as best I can……it’s the only bad thing in my life at the mo…..I have a loving family,a loving caring partner and I have 2 jobs so I’m ok in other aspects of life…….still waiting for ENT appointment but obviously not expecting a miracleI’m just curious as if there’s more going on as well as T

Happyrosie profile image
Happyrosie in reply to Bowler200

The older you are the more your sleep is disrupted. T hardly bothers me nowadays (except at the moment while my ears are blocked and am awaiting suctioning, so at is loud and vertigo lurks too). But I feel lucky if I can sleep four hours without waking. Get up, pee, drink of water, might sleep and if I don’t after an hour I’d get up and read a book for an hour.

I’d say that three hours sleep, awake for a bit then another two or three hours then awake is normal once you get to your sixties and beyond - this from an article i was reading about sleep a few years ago.

Bowler200 profile image
Bowler200 in reply to Happyrosie

Thank you again happy Rosie …..I’m 61 years young and yes I did wake up during the night occasionally before my spike ….last night I slept 5 hours and the maybe 1 and a half……I’d be happy with that again tonight and thereon in…..I don’t like waking up to T but I guess I just better get used to it

CHswim471 profile image
CHswim471 in reply to Happyrosie

Hi Happyrosie. I just wanted to say I found your post re sleep reassuring. I've been worrying about my sleep patterns with tinnitus (only 4 weeks into this!) and I'm 65. My sleep has been broken for years but now it's worse. Thank you.

notdodgy profile image
notdodgy

I find sleep headphones and a mix of sounds from the Resound GN app usually work for me should I struggle to get off to sleep or wake up in the night.It's helpful to understand sleep cycles - it normal to (almost) wake up every 90 minutes.

Sometimes its a case of getting up. Warm drink - milk or sleep tea and listening to music (something like a t-minus track on spotify) then trying again.

I am reluctant to try medication as usually it only works for a short while.

Mille23 profile image
Mille23

Hi Bowler200I take 3-5 mg Melatonin every night, and it has helped me to fall asleep. I wake up many times during nighttime, put on my audio book, listen to the voice and falls asleep again. 😊Before using melatonin, I used Imoclone , which is no good on the long run, as it is addictive. My tinnitus is 24/7 and the noise is very intrusive.

It is a daily struggle with T , so I am glad that I have found a way to get a somehow

good nights sleep.😊.

purenostalgia profile image
purenostalgia

One point I have noticed, since my Tinnitus spiked in March I have not noticed any dreams, until last week and I have started dreaming again.

msspinner profile image
msspinner

I hope you get some decent sleep soon. Maybe an adjustment to bedtime routine of when you last drink caffeine etc could provide a solution. I should think you've already thought of all this but I find that if I'm going through a period of disturbed sleep, if I go to bed early at least I feel I then have enough time to read in the middle of the night without getting stressed. And I can then still have a decent chunk of sleep after this.

1966366 profile image
1966366

It will make you drowsy if taken an hour or so before bedtime. However, it does not reduce the noise of your T (well it didn't mine or any of my friends). Give it a whirl. What have you to lose? All the best

Bowler200 profile image
Bowler200

Thank you all

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