Log in
British Tinnitus Association
2,845 members1,824 posts

Developing effective treatments for tinnitus

"To truly understand tinnitus, you need to understand perception – which means getting to grips with a range of some of the most fascinating aspects of neuroscience."

One of our Professional Advisers, Dr Will Sedley, discusses his research into tinnitus and developing effective treatments - it's a really interesting read. The good news is that he thinks there will be a cure (although he can't say when).

openaccessgovernment.org/ti...

Nic (BTA Communications Manager)

22 Replies
oldestnewest

Thanks Nic. I have habituated so my life is ok again “nearly normal”, but I truly hope the cure is near as I worry so much for young people. The continual wearing of earphones will bring about more sufferers.

Angela xx

4 likes
Reply

Hi Ivan,

My journey to habituation began with Mirtazapine anti anxiety pills 30mg and a hearing aid and masker (which I have featured in an earlier post). I also bought a sound oasis machine from the BTA which I have on rainfall every night. I also need background noise - not loud - to help mask the T. The first 6 months were hell but when the Mirtazapine took effect I began to calm down and my T and head pain also calmed down. I was weaned off the Mirtazapine over 12 months.

It took a full 2 years, I would guess, for me to start feeling normal and not being consumed by the noises in my ears and head. I stopped using the masker but need the hearing aid to quieten the T.

It is now 4 years. I wake up every day with my pulsing ear/temple but after putting on my hearing aid and getting on with my day it begins to fade.

Sometimes it spikes but I have to be confident that it will quieten. I hate the condition and hope that one day I have utter silence.

I hope that this helps and wish you well

Angela xx

4 likes
Reply

Thanks Angela - yes!

I was on clonazepam for 6 months prescribed by the ENT. GP did not want to subscribe Mirtazipine. I don’t have earing aids. I use the sound relief app on my smartphone 24/7. I go see my audiologist and chech for some ear aides. Thanks for your message. Ivan xx

1 like
Reply

My tinnitus appears when I take out my hearing aid, generally speaking, so I can recommend having your hearing checked. xx

Reply

I have a big drop as of 4000 hz / at 8000 hz , it goes all the way down. I also asked for a sound machine during the night; they had nothing to offer over here; I might have to go over to London I guess and see a Tinnitus hospital over there. Xx

Reply

Hi Ivan,

I have an App “Tinnitus Therapy Lite” on my iPhone5S which I use when I am away from home. It was free of charge.

Angela xx

Reply

Ps Ivan, the BTA sell many products to help - have a look at their website

Xx

1 like
Reply

I do hate when these articles start off with such a horrible negative image with someone holding their head 😔

4 likes
Reply

So do we! It's a real bugbear of ours. Sometimes, even when we've provided pictures, they don't use them and go for the stereotypical image they've used here!

Nic (BTA Communications Manager)

1 like
Reply

Why??!? People should realise that tinnitus can destroy lives! Why should Joe Public give a stuff about finding effective treatments for tinnitus if the accompanying imagery depicts smiling, happy, healthy people enjoying their lives?

Use a picture of me trying to hide the tears from my kids!

1 like
Reply

Well, a photo of you looking upset but trying to hide it would make more sense than you have red heat radiating from your ears, or blue lights around your head, which a lot of the stock images seem to be. And of course, people with tinnitus know that putting their hands over their ears doesn't help at all!

Nic

Reply

You don't see articles about heart disease with pictures of folk clutching their heart about to collapse.

Professor David Baguley, the President of the BTA, made this same point recently, so that's good enough for me.

1 like
Reply

Atleast there's hope 🙏

Reply

Hi Nic, nice to see a post about research. Can’t believe in this day and age that more can’t be done. All we seemed to be offered is hearing aids, maskers, TRT etc none of which provide not much hope for the future.

I know habituation is possible, been there and done that, several times, I would truly love to wake up one day and hear nothing.

I agree with Angela, there’s going to be an epidemic soon of people with this debilitating illness. Youngsters need to be made more aware of the permanent damage they can do to their ears and the years of suffering they’ll be left with.

Millions worldwide have this, but research seems to be very sparse. There must be a lot of money to be made from positive drug treatment. Why isn’t more being done?

Ingrid xx

2 likes
Reply

Hi Ingrid - my next post lined up was going to cover this - can you wait a day or so? I want to spread out the good stuff! :)

Best wishes

Nic

1 like
Reply

Hi Nic, nice to have your lovely self back more often on the forum! You are so valued by us “old timers “ 🤗

Angela xx

3 likes
Reply

Hi Nic

Glad you’re back.

I’m looking forward to your next post. I’m intrigued 🙃

Ingrid xx

1 like
Reply

Hi Nic

Any more news about the good stuff that you’ve got lined up?

There’s lots of people on here that need some positive news at the moment.

Thanks ingrid

Reply

Any sign of your 'good stuff' yet Nic? The suspense is killing me, along with the T.

1 like
Reply

I can’t wait, hopefully it’s going to be good news for us all!

Reply

Great news, I did read his article on the net somewhere. It can’t come soon enough for me I’m suffering like hell my T is mega loud and it has been for weeks now. There’s no chance of doing anything to lower the high pitched scream in my head. I’ve tried but the noise is just to loud how I’m staying sain is beyond me. Like I’ve said before my doctor hasn’t got a clue and the local hospital is exactly the same. So all I can do now is pray

1 like
Reply

Nic

Whilst this article offers some good news the research appears to cover tinnitus related to hearing loss only which doesn’t apply to mine. Whilst i am in the early stages of diagnosis I believe that mine is vascular, i have very loud dronning noise which is like being next to a helicopter 24 hours a day. My Gp said that tinnitus can be a ‘but annoying ‘ which is an understatement to say the least he then diagnosed me with exhaustion tube disfunction without any test at all. I had to pay to see a private ent consultant who confimed it wasnt this and suggested referal to my local ent clinic for further investigation and an MRI. The point i am making is that GPs need training and education on how debilitating this condition is otherwise people will not have access to onward referral to get help.

Tricia

1 like
Reply

You may also like...