Apologies if this isn’t the place for this question - not sure where else to ask.
I have decompensated cirrhosis and have been carefully watching the amount of salt I’ve been consuming.
We are going away soon (UK based, but owing to the building etc etc.) where it’s not advisable to drink the tap water.
I understand that lots of bottled waters contain levels (some high) of salt. Getting slightly confused with the labelling on these compared to “normal food” and wonder if anyone could point me in the right direction for any I could take/buy there.
Many thanks and sending all best wishes to you all x
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SirRobert
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How long are you going away for and would you be able to take it with you?
My hubby is finding that changes in water (on campsites) is causing him lots of diarrhea issues so we take containers of tap water from home. We bought 2 big containers of bottle water from Tesco and just reuse these bottles.
Some bottled water does indeed contain higher levels of sodium which you need to be cautious of. There was a member on here some years ago who's husband developed really bad ascites and ended up being hospitalized abroad after drinking bottled water.
Hi Katie. Thank you for this. Yes, didn’t think it would be a great idea. Unfortunately we are going by train, but I guess with some planning that could work.
Oh you should manage for 3 nights with one 5L bottle - the ones we got from Tesco were from the Eden Valley (10.0 mg of sodium per litre) & have a cushioned taped on handle - we just use the bottles and refill with home tap water. Can you take a wheeled trolley with you to transport your stuff so you don't have to carry it.
I wouldn't like to say (my hubby didn't have ascites issues and this has been post transplant when we were staying at the caravan after his operation because the change in water was upsetting his tummy) - we just use the bottles because they are a handy size and use tap water from home.
I had a Liver Transplant nearly 8 years ago and was advised to drink sparkling bottled water as opposed to still. It was likened to drinking from a still stagnant pool or a free running stream. Put like that it sort of made sense, I think.
Hello - I am a bit surprised by their recommendation for sparkling water - many contain extra salt as part of the carbonation process - how did it work for you? I have compensated cirrhosis and a couple of glasses of even naturally sparkling water gives me mid back pain.
My mother's home is very rural and therefore not on a mains water supply and is instead fed by local streams/rivers. While it's filtered to a degree, it's advisable not to drink the water. She uses a water filter in the house.
Brita do a portable water filter bottle for less than £10 from amazon or a camping store.
If you're only going for 3 nights I don't think the small amount of sodium consumed in bottled water would make much difference. Id rather run the risk of extra salt for 3 days than the risk of serious water bourne illness from unpure water. If they state its not fit, it must be bad!! Food poisoning can do much more damage to your liver than a slight increase in ascites - as we sadly found out whilst abroad last year.Enjoy and take care,
I drink lots of water. From bottled to filtered. Salt is in everything so it can't be avoided. That being said avoid branded bottles water like superdrug (taste salty and awful). Evian has least about of tdd but tasteless, buxton taste salty to me, volvic is more rich mineral content and my favourite (not particulatly salty). Highland spring ok but also a little salty.
Despite the bottle water recommendations they contain pfas which I think is more hazardous and carcinogenic than excess salt. So better to get a watee filter. Even if its a single cartridge of activated carbon under your 3 in 1 sink.
I personally use a berkey water filter. The cartridges last over 10 years. You just run them through a water to clean them 6 months to a year. I drink from that mostly and get volvic for variety.
If you go for reverse osmosis filter its not good to drink without re-alkalising and the alkalising cartridge is really salty and I can't personally drink it.
You can get RO and alkalise it yourself with some experimentation (calcium, magnesium, trace elements, potassium bicarbonate etc. Though RO wastes 50% of water. This claims to only waste 20%.
At the very least to mitigate salt excess just consume more potassium. Lots of vegetable juices or chick peas, mungbeans etc.
Hi Sir Robert, I recently did a survey of bottled sparkling water using the sodium values shown on the Ocado website. I did this for my friend who has cirrhosis and hates drinking tap water. You could maybe do the same for bottled still water. I couldn’t believe the variation. Anyway, Highland Spring came out lowest of the sparkling waters - and, amazingly, also one of the cheapest! (NB London tap water has one of the highest sodium levels in the uk - most areas are much lower apart from eastern areas according to this table: ncbi.nlm.nih.gov/pmc/articl...
Wow, I never knew any of this information, I've been drinking at least 7 litre bottles a week for years, I've got NAFLD now cirrhosis I've got a fridge/ freezer that gives out water ( would that be OK to use?..
Is your fridge plumbed into mains water? Then of course you are able to drink it. This issue arises if you are potentially drinking lots of bottled water which may have a high sodium content as it can complicate matters such as fluid build up/ascites (check the labels on your bottled water).
SirRobert is going somewhere where he has been advised the tap water isn't suitable to drink so needs to have some safe water to take with him.
In my hubbies case it's the change of water when we go to the caravan site that upsets his bowels so we take drinking water from home with us - for his meds, making up cordial and cold water drinking. He's ok with campsite water once it's been boiled.
Hey SirRobertn. A few years ago when my liver was in a decompensated state, ended up in the hospital with an incarcerated hernia. I had emergency surgery. The surgeon oversaw my recovery. He went to the extreme on no sodium and I almost died from lack of sodium. He consulted with my gastroenterologist and they gave me albumin. Sodium is a balancing act. You need it for many functions in the body. I finally compensated and don’t add sodium to meals , and feel fine. Hope this helped. God Bless.
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