Oedema

[Ewife]

Husbands ankles and feet have absolutely ballooned - are others finding this a problem? I'm thinking it's probably his body not coping as well as usual due to hot weather. He's already on 100mg Spiro. I'm thinking he should put them up more today and see how next week goes 🤔

[redpoint72]

Morning ewife.Yes I've also had issues with lower leg ,ankle and feet oedema.....for the past 12 months and more really,even though walking everyday.

I was also put on furosemide as well as spironolactone. My liver nurse organised that,they do seem to work better together, than just one alone. Could you run this by your husbands medical team? Though keeping close eye on my kidneys throughout.

Or should be!!!!!!

Take care. Chris

[Millie09]

Hi Ewife ,Hope you are looking after yourself aswel as hubby..

So , I'll second what Chris said in his reply .

My ankles, my feet and even up to my knees at one point balloned up with oedema , I too was on a mix of spiro at 200mg along with furosemide at 100mg , seemed to work better as a mix of the two .

Plus this warm weather really doesn't help .

Can you contact hubby's GP or his hepatologist secretary to see what they say ? ..

Mean time make sure hubby's legs are elevated above hip height, control his fluid intake, I was only allowed 1.5 ltr per day ,that also included water in my hot drinks .

I Hope things ease for hubby Ewife ,

Try not to worry, you please take good care

Best wishes linda x

[Ewife in reply to Millie09]

Thanks ,

He has had furosemide before but didn't seem to do much, so they stopped it - but if he is still swollen next week I might ring them and see about re-introducing it. Guess they might like to know the change anyway.

Ewife

[Millie09 in reply to Ewife]

Your most welcome. Oh I see , maybe if things have not changed in regards to the oedema they might increase the spironolactone.

Either way I hope hubby improves

Linda x

[Caryldavies1]

hiya, I had the same and the meds didn’t work apart but when taking them together it’s really kept the swelling down until this week where my legs have become a little bigger but I think that could be a combination of the heat and needing to up my dosage. Il be running it by my consultant in clinic next week.

I’d advise you to do the same maybe? I think the heat certainly doesn’t help - loose clothing makes it less uncomfortable but doesn’t help the ballooning as much as they think but it does feel better than feeling your clothes getting tighter constantly.

Good luck.

[JWLiver]

I’m same as the others - taking a combination has really helped me! Took a while to build up in my system but then touch wood I’m doing much better.

Definitely keep the feet elevated whenever possible as makes it much more comfortable. If I was going out etc I’d make sure I got shoes on asap after getting up as they weren’t swollen on waking up after having them elevated overnight and if I didn’t I’d never be able to get them on! Also then the shoes kind of acted like compression socks, although by the end of the day they did start to become sore.

Speak with your specialist and hope it improves 👍🏼

[Ewife in reply to JWLiver]

Haha, definitely he can relate to getting shoes on asap when you get up in the morning. That's exactly what he has to do - and once they're off they're off! Crocs from then on. I suppose if the body is struggling to function with a condition, it makes sense that any extra stress such as hot weather will cause some weak points to show up. Strange though, because a few weeks ago, at check up his legs were really good and fluid looked well managed. Latest scan just showed a small pocket of ascites, so I guess even though well managed, it's still there.

Have a good day everyone.

Ewife

[oap74 in reply to JWLiver]

try sketcher shoes and soft top soaks works a treat for me. All the best

[BritishLiverTrust8 Moderator British Liver Trust]

Dear Ewife

This is a question that your husband's own health care professional is best placed to answer, as only they have access to your medical records. We suggest talking this through with your own doctor or health care professional in the first instance.

If you [are in the UK and] would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

[Rshc]

my understanding from my partners consultant is that Spiro is better for stomach fluid. He had to go on a combo of Spiro and Bumetanide to target both

[NorthLad]

Hi, I don’t want to sound alarmist but I would get this checked out asap. I had similar 3 years ago and I should have done something about it but I didn’t and it got worse.

[Readlots]

Mum had a referral to an odaema clinic. They provided “armadillo wraps” not the technical term! Which seemed to help. I know oedema referrals are standard for women who’ve had breast cancer but don’t seem to happen for liver patients. Might be worth asking your liver doc or GP to see if there is a service in your area.

[oap74]

I couldn’t walk without a stick and not very far, had a stent fitted to get the blood flowing in my foot worked a treat. Next day oedema came in that foot,saw the surgeon 6 weeks later said it was nothing they had done, suggested short course of water tablets, took them for a month even though the leaflet said with all my problems I shouldn’t but doctor said ok, no change. Now for the good news I can walk without a stick although not very far but given the choice it’s a no brainier, as for shoes and socks highly recommend sketcher shoes and soft top socks. Win Win. All the best

[vinylcollector]

That is fluid collecting at the lowest point in the body. Discuss with your medical professional.