Gp won't help: I see my gp yesterday I... - British Liver Trust

British Liver Trust

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Gp won't help

28 Replies

I see my gp yesterday I was hoping he would contact the hospital to make my ultrasound urgent, I told him again about my stomach cramps, headaches, muscle cramps, sore eyes, chest pain when I eat, and told him all my joints and bones hurt,the pain in my liver area because my liver blood test are normal he's told me to see a psychiatrist I really don't know what to do now.

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28 Replies
Iro1 profile image
Iro1

Have you had an ELF test?

in reply to Iro1

No, doctor won't send me to a gastroenterologist or liver specialist.

Iro1 profile image
Iro1 in reply to

He will have to if ELF test comes back at 10.5 or greater, and he or she will know this. Hand write three letters one to the GP, one to Practice manager and one to the GP senior partner as follows:Dear......

I have concerns about my liver, NICE guidelines state that normal Liver Function tests are not reliable in detecting fibrosis. I respectfully request that my GP arranges an ELF blood test for me. I do not need any further appointments to arrange this just the blood forms.

in reply to Iro1

Thanks for that.

Roy1955 profile image
Roy1955

Your Dr has made a diagnosis and suggested a treatment plan.That plan involves seeing a psychiatrist and is probably good advice.

Health anxiety is as real as a broken leg but because it can't be seen it takes a long time to accept.

You have nothing to lose by accepting your Dr's offer so give it a try.

A psychiatrist is a fully qualified Dr so they can arrange other tests if needed and surprisingly they are a fast track into the whole of the health system.

Don't reject the Dr's suggestion, it's a good one!

Iro1 profile image
Iro1 in reply to Roy1955

How about a psychiatrist and an ELF test? When I was sectioned the psychiatrist told me that my fears that my testoterone had plummeted were 'part of my psychotic episode'. He put me on higher levels of anti psychotic drugs and more anti depressants. He also told me that if I persisted in my claims I would have to stay on section 3 of the Mental Health Act.Unsuprisingly I shut up, organised a private test, 8nmols, gave the result to my GP and now receive TRT from my urologist.

It is not either or or.

in reply to Iro1

Bastard's

Iro1 profile image
Iro1 in reply to

true you have to lie to get off section

in reply to Roy1955

5th of June the mental health appointment, meanwhile I'm getting worse each day.

in reply to Roy1955

Yes fast tracked the 5th of June

Eurotrash profile image
Eurotrash

Hello. I have had anxiety all my life and I have had many of the symptoms you describe.

I lived in the UK for over 20 years and I was unable to get tested because my GP disregarded my symptoms because of health anxiety until I moved to Germany.

Liver disease can exist whether you have health anxiety or not and whilst you might well need a psychiatrist to deal with your mental health problems, you deserve to get at least an ultrasound and a test to check the stiffness of your liver. Blood test are not a reliable way of ruling out lover disease. In fact, many cirrhotic patients have normal blood markers when compensated.

That does not mean you have cirrhosis. I was diagnosed with fatty liver amd I adjusted my diet as much as I could and the symptoms got better.

The liver pain was very real and I notice if I indulge or have more than a couple of beers per week. And by a couple I mean two, not a few.

The advice you have been given about asking for a referral by sending a letter and quoting NICE guidelines is great.

You can also find an alternative surgery if you feel ignored.

The NHS is in crisis and underfunded at the moment. Doctors act as goalkeepers and avoid referrals because the system penalises them.

You deserve to be assessed thoroughly by a consultant.

That does not mean you have any acute or serious liver problems. But having this checked out is important.

Try not to catastrophise but push for your rights as per NICE guidelines.

All the best.

Iro1 profile image
Iro1 in reply to Eurotrash

Correct, failure to follow NICE guidelines could lead to action by BMA and other regulators. This kind of significant error could be reduced if GPs worked with even the most basic AI

in reply to Eurotrash

I'm waiting for a ultrasound, but I haven't been given a date yet.

in reply to Eurotrash

I was diagnosed with a fatty liver last may after a ultrasound, but the doctor didn't give me an appointment with a dietitian after he said he would.

in reply to Eurotrash

So does decomponsated cirrhosis have abnormal liver function test.

Ubwa profile image
Ubwa in reply to

Yes

in reply to Ubwa

Thanks

in reply to Eurotrash

Did your fatty liver hurt

Iro1 profile image
Iro1 in reply to

in my experience dodgy gall bladders hurt.

Iro1 profile image
Iro1 in reply to

dodgy livers do not have any nerves as far as I know, but I am no Doctor. If you do not have the varices etc I would just calm down, get your hand written letters in firts thing monday. An ELF test is the Gold standard without biopsy. Message me if you need support.

in reply to Iro1

I find it hard to swallow food, I did have a barium swallow last April and that was apparently normal would varices show up in a barium swallow.

Iro1 profile image
Iro1 in reply to

Not a Doctor do not know, get the ELF test sorted

in reply to Iro1

They won't do nothing for me at the surgery, looks like I will have to find another surgery.

RnayStro profile image
RnayStro in reply to

with all of your health issues going on - you most likely have extreme anxiety as well. I had such anxiety that I also found it hard to swallow food. Had a giant lump in my throat and was nauseous after forcing down bites. Counseling and anti anxiety meds cured that portion of my problems.

Ubwa profile image
Ubwa in reply to

That would be your hernia

VeeWat profile image
VeeWat in reply to

endoscopy shows varies

in reply to VeeWat

Can't get one with my GP

Thanks 👍

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