Aagghh.: I have had a yes from the... - British Liver Trust

British Liver Trust

38,208 members18,737 posts

Aagghh.

Charlie-legs profile image
10 Replies

I have had a yes from the Queen Elizabeth University hospital going on to the waiting subject to a yes from the radiology team. I should be told for sure today.

Of course I have mixed feelings about it but just as we are getting a plan together financially my benefit is now £345 a month. That's limited capabilities one. £0.0 UC ( I asked why. I am only entitled to £1.04p) No housi or that stuff has been stopped. My partner works but now I am told that they have overpaid me and will be taking back each month. Why does life chuck things like this just when you really don't need it! Rant over....sorry but I need to talk to people that understand.

Written by
Charlie-legs profile image
Charlie-legs
To view profiles and participate in discussions please or .
10 Replies
Ubwa profile image
Ubwa

Sorry can't help with the benefits but just want to say high from a fellow guest of the same location who was just told they good news today too 👋

ThreeSmiles profile image
ThreeSmiles

Hi Charlie-legs

Here’s hoping that it is/was a Yes for you 🤞.

Miles

Charlie-legs profile image
Charlie-legs in reply toThreeSmiles

They haven't called to say it's on or not but they said they were calling yesterday 🤷‍♀️ . I am having very strange dreams about it all.

ThreeSmiles profile image
ThreeSmiles in reply toCharlie-legs

Charlie-legs - I seem to recall that at that time my brain was causing all sorts of - not so- funny things to be going on. It’s a very stressful time so I hope you get your answer soon 🤞🤞.

Milesxx

Charlie-legs profile image
Charlie-legs in reply toThreeSmiles

Sorry that you experienced this but thanks for sharing as I feel like I am going mad!

I spoke with them this morning and should hear today or tomorrow. I'm having dark thoughts so probably I am being melodramatic!!

ThreeSmiles profile image
ThreeSmiles in reply toCharlie-legs

Crikey - you are really being kept waiting - hope it is today!

Yellowsydney profile image
Yellowsydney

congratulations on going on the list, have your bag packed and your phone charged and constantly with you.

if you use Facebook please feel free to join out friendly and knowledgeable Facebook group liver transplant support UK

Hilary

Rshc profile image
Rshc

well done getting on the list. My partner was listed for the royal free 2 weeks ago and it was such a relief getting the call to say they had finally listed him as we had to wait an extra 5 weeks from his initial assessment for an extra CT scan they wanted. We are just getting used to keeping our phones charged but I do admit to jumping out of my skin everytime they ring! Does that ever change I wonder!? Get your bag packed, I did my partners the day he was listed and popped some treats and nice new toiletries in there plus a little hidden note for him to find when he is hopefully through the other side of all of this xx

Charlie-legs profile image
Charlie-legs in reply toRshc

lucky chap

Readlots profile image
Readlots

Congratulations Charlie, that’s fantastic! Re the benefits - Citizens Advice do benefit reviews and can help sort out any problems.

Not what you're looking for?

You may also like...

Repeat Alpha fetoprotein blood test

Hi it's been a whiĺe since I've been on here. I have arld since 2000 which has been pretty stable...
wurzle profile image

When it is all getting too much.

I have laid bare my soul on this Forum, many a time during the past two or three years, whilst my...
Splodge60 profile image

Is this normal

I was diagnosed with AIH in april 2014,after initially being told I'd need a transplant,my...
guineapig1 profile image

What do you feel like when you have a HE episode?

Mine is like, Yes, I know the wall is supposed to be the place where you do wee wee. Doesn’t...
Brett11 profile image

“Mad Matty: "Have I gone mad?" Alice: "I'm afraid so. You're entirely bonkers. But I'll tell you a secret. All the best people are.”

hello my fellow liver peeps ,,just an update on me my plans my thoughts and hi to all the newcomers...

Moderation team

See all

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.