Sleep

[Lippy42]

Hubby has decompansated liver disease we've had some rocky months but just lately been steadily living each day with our new normal .Today he has been very sleepy went to bed at 10 last night slept till 11 this morning and has slept on and off all day hes still asleep now is this something I should worry about or is this part of the package with liver disease 😒

[Readlots]

I think it can be normal with liver disease. Did he have a busy day yesterday? Lots of visitors? Fatigue is one of the major symptoms. However, if this is new for him and you’re worried I’d contact his liver nurse to check. The British Liver Foundation helpline are also very helpful.

[Lippy42 in reply to Readlots]

We were busier than normal with it being bank holiday I'll keep my eye on him see how he is tomorrow Thankyou x

[Readlots in reply to Lippy42]

Busy days knock me out and I could sleep for England but It’s worth it to have those busy days with friends and family x

[Muriel16]

I too have decompensated liver, and agree it’s worth it to have the busy days, but so frustrating when the next day you have to sleep on sofa, especially, as in my head, on a nice day, would love to be gardening.

[Ewife]

My husband is the same, he gets to a point where he just cannot push himself (which he's usually very good at!) He says its like someone's taken the batteries out.He did have an unexplained episode a few months ago whereby he spent 3 days unable to get up, sleeping absolutely loads. The specialist and GP both of the idea that he may have had a bit of a virus - even though he didn't exactly have symptoms- it obviously knocked him. Don't be afraid to just get him checked by GP if he is still like this today, or gets worse.

Atb

Xx

[Aotea2012]

It may be worth getting him checked out by his GP. I have cirrhosis. It’s well compensated so can pretty much live a normal life, but I do get tired more quickly than I used to. I also watch out for changes like more or less sleep or less appetite. I’ve found those are often markers for me. I suppose I’m just more vigilant and pay more attention to my body these days, now that I know I have liver disease. It’s probably nothing to worry about but worth getting checked out just in case.

[Flowergirl24]

It’s the liver. Follow what your body tells you and don’t fight the sleep when it calls.

[Dogbot]

Hi Lippy42 always worth asking if your worried the doctors or liver coordinator but I do have days where my grandson is a lot , it’s great playing with him but by 7 I’m ready for bed. Do ask to set your mind at rest.Stay Safe All

Dogbot 🐶🌈Dave

[Hidden]

My husband has cirrhosis and he sleeps a lot and is always tired

[Lippy42 in reply to Hidden]

Everyday can be different I worry all the time and miss life before cirrhosis our life has changed so much 😒

[Ewife in reply to Lippy42]

Snap. I didn't realise you can grieve for a loss of lifestyle and identity, as well as death. Its important to realise this and be kind to yourself as you go through this process. I wouldn't have known if my therapist hadn't pointed it out to me when she was working with me over family bereavement. If you're like me, you try to hide your grief from your partner too, because I don't like to make him feel bad.Take care,

Ewife

[Lippy42 in reply to Ewife]

Yes that's how I feel and then when you see people planning holidays I loved our time away and just have hope and faith that one day things may get better .I miss the closeness we had and as much as I will always care and look out for him i miss my husband and what we had things really are hard health really is important it has changed everything 😪