Post Hep C treatment .. what next? - British Liver Trust

British Liver Trust

36,563 members17,984 posts

Post Hep C treatment .. what next?

MikeS-71 profile image
4 Replies

Hi guys ,

Just wondering if anyone has any advice .

I’m currently down to my last 5 days of zepatier treatment for hep C , bloods come back all good and in range and generally feeling much better . But the last few days I’ve been extra tired and no idea why. I’ve not touched alcohol since the day of my diagnosis in November and sleeping well.

My fibroscan was 12.8 back then so awaiting the new scan next week to hopefully see an improvement. Does the fatigue ease a little once the meds have stopped?

Any advice or personal knowledge greatly accepted :)

Thanks in advance .

Mike

Written by
MikeS-71 profile image
MikeS-71
To view profiles and participate in discussions please or .
Read more about...
4 Replies
DavyGravy profile image
DavyGravy

Hi Mike

TBH I have felt a lot more tired but I put it down to relief. I think, waiting for my blood results to come back was keeping me on edge and when they did come through all clear, I did sleep for 11 hours :)

We still have to try to reverse the fibrosis and that will have an effect on us until we start improving our livers. But it's still nice to know that the virus is not damaging our livers so all our efforts will be doing good without anything countering them. But my boss says I'm not allowed to sleep at work.. :)

MikeS-71 profile image
MikeS-71 in reply to DavyGravy

Hi Dave

Thanks for the reply mate :) yeah I agree it definitely makes you feel more tired but once it’s out of our system hopefully we can get on with the next job of trying to repair our livers.

Next Tuesday is my last pill and I will be getting my end of treatment bloods taken so hopefully it will show that it is now undetectable.

Onwards and upwards and fingers crossed we can keep on fighting back against the damage done.

Have a great weekend pal 😊

Mike

cfre profile image
cfre

Hey Mike, I was on the same meds and completed the course a month ago. I didn't suffer from any side effects at all and the virus is now undetectable. However I had hep c for over 20y without knowing and when I had my first fibroscan the reading was 13 but it was a mobile unit, had another in hospital yesterday a d it was 6.5 so God knows where I stand!

MikeS-71 profile image
MikeS-71

Hi cfre

Thanks for the reply mate . I guess to be honest I haven’t really had any side effects also apart from being very tired which I’ve had for years ( probably due to long term hep c also)

That’s great your reading is down to 6.5 at the hospital , I’d say you’ve done really well to get the figure down from 13. I work with hepatology nurses and they reckon the fibroscan can’t tell the difference between damage and inflammation whilst you have an active hep c virus so the fact it’s lower and your now hep c free I’d take as a good sign. My consultant was happy with my bloods coming back in normal range and doesn’t seem too concerned, so hopefully my end results will come back clear and my score lowered too.

Let us know how you get on going forward mate.

Take care

Mike

You may also like...

Concerned About The New Hep 'C' Drugs & Treatment

being on the waiting list for 7 days, I was only in hospital for 8 days. The reason for the...

Hep c treatment employment and allowance benefits stopped

Anyone got advice for me I have chronic hep c genotype 1a I have just finished treatment with the...

Treatment with Sovaldi for Hep c

Just thought to let people know at last Nice has recommended the treatment of Sovaldi to all Geno...

fibroscan + 3 month post hep c treatment results

Update on my hep C treatment

not had any major side affects accept for the obvious ie headaches, tired etc but ok. I hope any...