Platelets..: Does anyone,in the context... - British Liver Trust

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Platelets..

deanw41 profile image
deanw41
β€’39 Replies

Does anyone,in the context of compensated cirrhosis,what the platelets going up is indicative of?

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deanw41 profile image
deanw41
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39 Replies
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AyrshireK profile image
AyrshireK

A normal platelet count ranges from 150,000 to 450,000 platelets per microliter of blood. Having more than 450,000 platelets is a condition called thrombocytosis; having less than 150,000 is known as thrombocytopenia.

If yours are going up & have gotten to 135k then they are still on the low side but improved. So it's a good thing! My hubby sat at 20 at one point and needed platelet transfusions before procedures - last time we were told a score he was improved at 200k. His and your spleen are obviously not gobbling up platelets as much.

Katie

deanw41 profile image
deanw41β€’ in reply toAyrshireK

Thank you...πŸ˜ŠπŸ‘

Kji378 profile image
Kji378

Hi Dean πŸ™‚

My last bloods showed "Platelet count - observation (42P..) 127 10^9/L [150 - 410]" - so last November mine were 127.

I'm having them done again tomorrow, I'll report back. Usually if I'm lucky get some of the results the same day, if not early next week.

When I've questioned why they fluctuate, I'm told not to worry, they will go up and down because of Cirrhosis. I have Dr Googled it and then worried like mad, but that was a year ago and I'm still here (unlucky for some 🀭) so panic not!

Hope that helps a bit?

(42P..) 127 10^9/L [150 - 410 is the shorter version of 150,000 410,000 per microliter of blood, fairly straight forward I think.

deanw41 profile image
deanw41β€’ in reply toKji378

Oh right!! Well we are not far off each other......

Keep me update on your count..πŸ˜‚πŸ₯΄

Kji378 profile image
Kji378β€’ in reply todeanw41

Sorry that was a bit of a waffle. I'll let you know and I will ask them..πŸ˜²βœ‹"Oouu Dr Doodah, Dean wants to know...." πŸ˜‚

deanw41 profile image
deanw41β€’ in reply toKji378

Haha!! Yes I need this information!!! πŸ˜‚πŸ€―

Chaz3125 profile image
Chaz3125

My last bloods my platelets were at 91000 but expected. They were lower before that 😳If they are coming up and within range then that’s a good sign x

pushthrough profile image
pushthrough

That's strange I have compensated cirrhosis and my specialist in the US didn't even bring it up. I also don't need to take medicine which I'm learning is a great thing. Either that or she wants me to get more sick so she can make more money off me. πŸ˜‚ Totally kidding, she works at a great facility. Now I have to decide to look them up for myself and potentially worry or just not look at them. Hmmmm. Best of luck to you all!

teletonetapper profile image
teletonetapperβ€’ in reply topushthrough

Hi pushthrough. Hope you are ok and belated wishes for 2022. Could you contact the Hospital you are attending and ask them to explain your blood results if you need to. Worry not, here in the UK many people go from decompensated Liver Disease to compensated. Drink plenty of water as it will flush the toxins from your Liver. Stay positive, we are all different including ...... GOOGLE!! Best wishes to you.

wilmawemyss profile image
wilmawemyss

I don't know but have been through the same experience best of luck

DavyGravy profile image
DavyGravy

I would think, as our platelets climb, the risks of bleeds become less. :)

kensimmons profile image
kensimmons

My doctor has said that if a patient does the right things for some patients test results can improve. There is hope, plenty of it. I would google "foods that increase platelet count" and "foods that decrease platelet amount" and eat accordingly unless advised to do otherwise by a doctor or dietician. Of course platelets can be up and down for other reasons, not just liver reasons.

Ewife profile image
Ewife

Platelets are basically part of the bloods clotting agents, so too few makes blood less likely to clot. Well done on getting that score though, I'd say that's a good one, you are well on the way to being in range.

deanw41 profile image
deanw41β€’ in reply toEwife

Thank you. They are going up every 6 months. 95k,125k and 135 over 18 months. So in the right direction.πŸ˜ŠπŸ‘

pushthrough profile image
pushthroughβ€’ in reply todeanw41

Oh ok, so they test that using an INR test here in the states. I'm barely out of range so it still takes longer than normal to clot.

deanw41 profile image
deanw41β€’ in reply topushthrough

My IRN is 1.0

Kji378 profile image
Kji378β€’ in reply todeanw41

Hi I had to leave the party for a while, INR of 1 is perfect..get you! πŸ˜ƒ Fab

deanw41 profile image
deanw41β€’ in reply toKji378

Hello!!! How is one?

Kji378 profile image
Kji378β€’ in reply todeanw41

Hi πŸ™‚ ..one is ok just wiped out. Fractured vertebrae x 3 (poss' more now) and bone density loss in my hip so I have a cool gangsta style limp now and again (Osteoporosis that is part and parcel of the old Cirrhosis) I just got cheesed off so decided to focus on making the most of physiotherapy to strengthen the muscles that support the bones. But as you know can't have much dairy/calcium because of Gallstones, so sourcing it by gathering and foraging for other twigs, nuts and berries, but Adacl D3 and the delightful Alendronic Acid. ~ Ooo I love that med' πŸ˜– ~ are on the menu too. Not after sympathy btw..it just is what it is.

Anyway that is very boring πŸ˜„ How's things in your camp? Hoping all is good, sounds like you are doing really well. Woop Woop. πŸ₯³

deanw41 profile image
deanw41β€’ in reply toKji378

Hello there!! Sorry to hear about your added ailments,guess one has solider on!! How are your platelets doing? I’m good thanks 😊

Kji378 profile image
Kji378β€’ in reply todeanw41

It's just one of them...keep going and stay positive My latest platelets are 111 (about 3 weeks ago), so they have gone down by 3 since January.

I'm told not to worry as they rise and fall because of Cirrhosis, the rest of my bloods seem to be plateauing, so traa laaa 🎺🎢😁

I will report back with my next vampire results soon. Mind you my INR was 1 ...BUT this last lot showed 1.2, so I'm guessing lower platelets higher INR? Possibly clotting is lesser.. not a lot or big deal, just a 'tinky tiny' bit.

Take care 😁

muffins7 profile image
muffins7β€’ in reply topushthrough

They test platelets here too, they're usually on your cbc where your red and white blood cell counts and things like that are

Ewife profile image
Ewifeβ€’ in reply topushthrough

I think that's slightly different though. I'd like to understand it more. My husband has low platelets caused by his liver disease, but he also has a portal vein thrombosis so has to have blood thinning drugs to manage that. They monitor both of these separately- from what I can make out, I think the platelets are the actual clotting agents and the INR measure the actual thickness of the blood???? I questioned how he could get a clot when he had deranged platelet count but apparently its not uncommon. You can imagine how messy a simple nose bleed can get though πŸ₯΄

pushthrough profile image
pushthroughβ€’ in reply toEwife

I'm sorry to hear that Ewife! I had no idea how serious portal vein thrombosis was until my gastro doctor thought I had it after reviewing a MRI scan and freaked out. She sent me straight to the ER. Thankfully it was portal vein hypertension and not thrombosis. I'm very happy to hear he is able to have it managed with medication.

pushthrough profile image
pushthrough

I think that is good. I believe mine is 1.2 which is out of range.

Kji378 profile image
Kji378

Reporting back ~ Well I didn't expect that. Mine are down from 127 to 113 😳 (minus the 0000'0s) hmm more dark greens for me I fancy.

deanw41 profile image
deanw41β€’ in reply toKji378

Did they say why?

Kji378 profile image
Kji378β€’ in reply todeanw41

I view mine on something called systemonline. I don't bother asking anymore as they tell me I worry too much and that it will fluctuate.

I can monitor what I eat, ie if potassium or sodium are up or down, less potassium foods or lower salt and decrease fluids if sodium is low. If that makes sense.

It just says "Full blood count Report. Satisfactory. No further action." I have Cholecystitis (Gallstone flare up as you prob' know) at the moment and on 'Co-amoxicalv' at the moment, it could be that. I have not been eating brilliantly, especially green stuff. However, I will investigate further, as I have dyplastic cells in my liver, which hopefully are shrinking and not turning nasty. But good news is my bilirubinnis the lowest it's been ever....

16 (below 21 is the range) woo hoo, no Maggie or Lisa Simpson skin colour in my camp!

I'll let you know what they say, I will ask, because it is a bit of a drop.

Take care πŸ™‚

EAT YOUR GREENS 😊 Mmm 🀒

deanw41 profile image
deanw41β€’ in reply toKji378

I see!! We do like to know theses things tho!! Bloody Gallbladders are a blimin pain!! I feel my stones moving about sometimes, weird feeling. That good about your billy!!! Def no Homer here either mines at 8. I do find all this fascinating.....

Kji378 profile image
Kji378β€’ in reply todeanw41

You can feel them moving? - Seriously, ..or do you jest? Someone told me to do star jumps, I managed 5 (I still had some ascites - not a good idea) now that was a Simpson moment DOH! πŸ™„

deanw41 profile image
deanw41β€’ in reply toKji378

Yes I can!!! I’ve had them years(14 years undiagnosed,missed on US). Under the right rib,just under,around to the right lower back and up into the right shoulder....

Kji378 profile image
Kji378β€’ in reply todeanw41

Oh cripes..14 years blimey. That's a long old slog. I think myself lucky then. Mine were put down to muscular pain, possible fractured ribs. I've mentioned in another post I had to do my own homework, request scan results.

I know mine hurt, but I can't feel them moving around, or do you mean the pain moves around. I had the shoulder and back pain/ache. Started off like a pebble thrown into water, the ripples or waves of pain went outwards, in the upper middle of my back. - shoulder blades. That felt weird, kind of catches your breath too.

Is that what you mean, I'm imagining a Gallstone festi' with your description πŸ˜‚

Kji378 profile image
Kji378β€’ in reply toKji378

Sorry, few typos corrected in that last post.

deanw41 profile image
deanw41β€’ in reply toKji378

Yes that’s what I mean!!!πŸ˜‚

Kji378 profile image
Kji378β€’ in reply todeanw41

I am intrigued. So, it's the ache back/shoulder pain, do you ever have the massive pains, like contractions across the stomach, ending up in fetal position and hot water bottle and as many pain killers as you can get for 48 hrs desperate not to go to A&E (which they advise), do you get those?

Also I have near on 80% of the time just the dull ache, under the right side of lower ribs. Feels like it should be the liver, I take Buscopan for that, it helps enough.

Have they not offered to remove it?

Soooo many questions sorry 🀯

deanw41 profile image
deanw41β€’ in reply toKji378

Well I used to take painkillers but not now because of the liver. They cant operate on me because I have portal hypertension. Years ago it was agony ,not so much that bad now. Yes I’ve been in A&E but not interested when you drink. I have a damaged pancreas which suggests I’ve had pancreatitis before? Normal so sugars but high amylase levels. Severe pancreatitis ruled out as my liptase levels are normal. They were definitely missed on the US. My Dr mate said those Us are open to interpretation and it depends on the experience of the person doing it.i.e sonographer or consultant radiogist on a CT scan. It’s a bloomin minefield.

Kji378 profile image
Kji378β€’ in reply todeanw41

Bugger 😧 Not nice, yes it is a minefield. It's a bit like one of those grab machines at the arcade, sort of. πŸ₯΄πŸ˜‚

I am pretty much the same re Gallstone/bladder removal. A bleed was a high factor, so was/is the lining of GB sticking to the what's left of Liver. So keyhole surgery would end up me, being opened up and far more risky. Ring any bells?

I was Grade 'C' child Pugh, then B, now pretty much A and Compensated. But I'm not in any rush to go back into hospital with the situation at the moment.

Anyway, well done for not having pain killers, I can only have the tiniest dose of anything. I'm sure it's all mind over matter anyway.

Enjoy Tacos have a great weekend. Take care. πŸ™‚

deanw41 profile image
deanw41β€’ in reply toKji378

Greens??? I’m having Tacos tonight!! Yummy....πŸ˜‹πŸ˜‹

Kji378 profile image
Kji378β€’ in reply todeanw41

🍩

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