Fibroscan - annoyed

[Tiaday]

So I was told I have NAFLD after my GGT kept rising and then two ELF tests within a year of each other has risen to from moderate to 9.5 severe I was sent for US which didn’t show anything .

I spoke to my GP Who agreed because my ELF test had risen we should get a fibroscan

I expected a scan but had a letter to say it was a call for today at 2pm - I logged onto the NHS site earlier to check timings all good - 2.05 pm came along no call so I logged onto the site to see if I was supposed to call but no the call has been moved to MARCH 2022 !!!

I will get back onto the doctor but I think it’s because NICE guidelines sat you only need to be tested every 2 years - that’s all well and good but things changed quicker than that !

Has anyone else experienced this in the early stages ! How quickly can it change and what should I be doing in the meantime !!

Thanks in advance

X

[Hidden]

Hi Tiaday

that is not good, I understand they can say every 2 years ,but, when something changes, there should be a need to know what is going on. Not just for us, but also for our consultant/ doctor.

Is there any possibility of you contacting your GP and asking if it can be brought forward?

A fibroscan obviously requires us to be nil by mouth that day and only water (or black tea or coffee) for 3 hours before the scan. It would be a long shot and require a little effort, but you could try contacting the appointments and let them know you will be nil by mouth every day until 12 noon, so if there was a fibroscan cancellation, you could attend provided you are contacted by 12 noon.

I think cancellations used to cost us (the hospital where I worked) around £150 and we were always happy if we had someone who could attend at short notice.

I was talking with an ex colleague last night and he said, he thinks lockdown has probably led to an increase in alcohol consumption. I do not know but, if that is true, I'm sure it will mean an increase in waiting time for an U/S, fibroscan.

Hoping you get it sooner, keep us updated .

Dave

[Seoe]

Yes sort of Tried to talk to dr and say about NIce guidelines as BLF say but not interested.

I have waited a year for hospital appointment and got one in Jan 22 and yes it’s only a phone call.

I have NADLD so I know could be worse but the pain in my liver never goes away and I am scared it’s progressing and no body bothered.