Hi all I was diagnosed with ARLD around 7 months ago, I’m recently out of hospital about a month ago.
Since then my life has been chaos, losing my job, many friends and even some family due to this disease I believe. My uncle even died of liver disease.
At the wake of his funeral is where this began, people there actually thought I was still drinking because I was acting drunk, feeling drunk and even talking drunk slurring my words and falling over. I hadn’t touched a drop of alcohol there, all I had was Pepsi, coffee and non alcoholic beer along with some cold snacks that were offered there such as sausage rolls and cakes
That’s when later on I started to feel really drunk and everyone could see that, I could also see how VERY drunk they were too. At one point in the evening I was actually sat there with my shoes off and feet up relaxing my feet (my legs and ankles were swelling up badly due to the acities or odema after being on my feet all day) with what looked like me drinking a shot of vodka (lactulose) and a beer (non alcoholic). This is a true story and looking back no wonder so many people disowned me thinking I was at it again, what a state I must have looked.
Not even doctors and nurses believe me. I had to get a BAC tester for on a morning to prove I wasn’t drinking but still waking up over the limit.
Yet people still don’t believe me and this is so frustrating because all it takes is a simple google search to find out the cause of it. This can’t be true because anyone can put anything on the internet right? Wrong it’s very true and there’s only a few people who are slowly starting to believe me.
It’s unbelievable even a hospital couldn’t figure this out but I did, I had such a hard time in there too for as long as I was there. I can hardly remember anything anymore now because I’m always drunk but not drinking!!
I go back for blood tests every other week now and they find nothing abnormal, still they won’t believe me.
There’s a lot of problems at home now too (parents) so it feels like I’m in this alone again. They’re doing a good job a looking after me while they’re still in disbelief of what’s happening and they’re big drinkers too and have been for as long as I can remember, I’m trying my best to help out where I can.
I’m still trying to figure my diet out right now because I’m obviously consuming too many carbs, there’s a lot more to this story but I’m not a great storyteller so that’s all I can do for now.
Hope this helps anyone going through a similar thing
I still trying or pretending to live as much as a normal life as I can, just like this never happened to me and I hope it doesn’t you
Good luck, I see light at the end of this tunnel
I also have the evidence to back all of this up because I know one day I might need it
Im hungover right now