Lobby for routine scans for those with... - British Liver Trust

British Liver Trust

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Lobby for routine scans for those with fatty liver disease

Dandy-Jones profile image
8 Replies

Good morning dear listeners.

I was diagnosed with NALFD 10 years ago which unfortunately developed into Compensated Cirrhosis. During those years when I received periodic blood tests they showed elevated liver results. However nothing was ever followed up or treatment or advice given and feel if it had, I might not have developed cirrhosis. Are there any campers out there who’ve has similar stories. Kind regards Dandy Jones🧐❤️

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Dandy-Jones profile image
Dandy-Jones
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8 Replies
AyrshireK profile image
AyrshireK

Have you signed the British Liver Trust petition for "Sound the Alarm 2021" - it is a campaign to change the situation where too many people go with undetected/untreated liver disease until it is too late.

You'll find details at:- britishlivertrust.org.uk/so...

Katie

Dandy-Jones profile image
Dandy-Jones in reply to AyrshireK

No but will do today, thanks for that info cheers Dandy Jones

confused71 profile image
confused71

I had NAFLD diagnosed and wasnt seen for two years by which time it had developed into Nash stage 3 I was so angry I havent had a hospital appointment for another 2 years so dont if disease has progressed

mtk0925 profile image
mtk0925

You never had any ultrasounds in the 10 years you were diagnosed? I have one every other year

Beachgirl77 profile image
Beachgirl77

Yes, I had elevated liver enzymes for about 25 yrs and they did try to figure out why but never did however I was told a few years ago thatI had a little bit of fatty liver but nothing to worry about. I carried on as usual and now I have a full blown fatty liver plus it has hardened. I now have a lot of symptoms and feel terrible much of the time. I have been told to lose weight and change my diet and exercise. My liver problems were not alcohol related and I don’t know if I have cirrhosis or not but was told I may have it and because of my age I will never get another liver. I am so angry about this! Although I did not live an unhealthy lifestyle I did drink socially and could have done all this sooner. Now it is too late and my liver is ruined and I feel awful. Nobody said anything to me until it was too far gone. I now get blood work done every 3 months and another fibroscan in 6 months. Sorry to make this so long but this really upset me.

Cat551 profile image
Cat551

I was diagnosed with NAFL about 15 years ago, by accident during a pelvic CT scan. My GI doctor gave me no advise or special diet. I’ve been told my elevation in AST and APT are fine and can be 5 x normal limits. It was my bad because I didn’t do my own research. Now I’m having symptoms. I feel my liver damage has progressed and looking for a new dr. to do some testing and hopefully with good advice. Thank you for posting to let people know it’s up to them to be proactive and protect their health. I wish you the best for the improvement of your liver.

Thiswillbe profile image
Thiswillbe

Hi. I too have high liver blood results but am told it is a year and a half wait for a fibroscan. I can't wait that long. It will be too late for me too !!! hugs

Roy1955 profile image
Roy1955

Main "treatment" for almost all early/compensated liver disease is down to lifestyle changes.You don't need the scan results or a number on paper to tell you that!

If bloods are off you make changes right away and not wait until a fibroscan confirms a problem.

Dr told me years ago that my bloods were not normal, he just said lose weight and cut down drinking.

Not much more they can say!

I ignored him and here I am!

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