Liver donation live donor

[Motik]

Hello beautiful people,

I want to ask a question.

Can my mom be a living liver donor to me.

She is 0 blood type, I am B.

What are other compatility requirements in liver donation?

[Worrysome1]

You must have seen the links by now, has to be same blood groups etc, same size. It also says recipients sometimes recover more quickly than the ones who’ve donated. Have you been diagnosed now Motik?

[Motik in reply to Worrysome1]

No, but im not ok, and im afraid. I want to ask mom for potential donation. I have seen blood types compatibility, but there must be some other requirements . My liver is failing and i cant get diagnostic yet...

[Worrysome1 in reply to Motik]

Type in search box, liver donors, plenty of discussion on here about it.

[Alibaba80 in reply to Motik]

I am certain mine is failing aswell and bloodwork is not always reliable

[Hidden]

If you had liver failure it would have been recognised and diagnosed by your doctors. Stop diagnosing yourself and looking for a donor.... this must be very stressful for your Mother. Think of the effect your worrying is having on your family.

[Motik in reply to Hidden]

Hello Laura. I am thinking about this every day . Its been almost 3 months since i got sick. I thought i getting mad in first month. I even went to a psychiatrist. But i didnt get better...and i lost tons of weight, my skin is peeling...I am barely walking, eating..... Its difficult for me too. I have wife, kids, parents.... Right before this event I was taking care for all of them ...Im just scared. You have good health system. I need only one doc to take my health problems seriously.....

[Hidden in reply to Motik]

Your constant worrying is causing most of your symptoms. There is nothing wrong with your liver. You sound as though you are just waiting for someone to tell you.." Yep your liver is knackered and you are going to die"

This is absolutely not the case. There are people on this site who truly are living with and suffering liver disease and all it's debilitating symptoms, none of which match yours. For goodness sake enjoy your life and your family, something many of those folk here would envy you for.

[Motik]

Thanks for good words guys...I guess you as well as most people think thats only my head is my problem....but read this first:

healthunlocked.com/britishl...

[AyrshireK]

Motik I don't know what's going on with you but it is almost certainly NOT liver related unless it is the gallstone issue explained by Richard. You have had numerous normal bloods, normal ultrasound, normal CT scan and a normal Fibroscan which showed F0-F1 fibrosis which is utterly normal.

You do not have end stage liver disease/liver failure with all those normal results - stress and anxiety can start to lead to physical symptoms when you are obsessing about something for so long.

None of the symptoms you've mentioned in any of your posts suggest liver disease and at some point you have to trust that doctors who have spent many years in training and practise know what they are talking about. All those tests you have had confirm that you don't have liver disease or at least don't have end stage liver disease with symptoms.

You've said about HE in other posts, you don't get this in isolation, it's a side effect of too many toxins in your blood and this would show up on tests, it's also related to portal hypertension which happens with cirrhosis and again the reversal of portal veinous flow shows up on ultrasounds. None of which your tests show.

You need to stop obsessing about this or you will cause yourself severe ill health but totally not liver related.

**on the point of live liver donation - I don't know what the system is like in Bulgaria but here in Britain it only happens when a person has reached the end of the line, all other treatments are exhausted and the only way to save a persons life is transplant. They undergo a huge assessment of both physical and mental health assessing them to see that they actually need transplant and are fit enough to have it. They then get listed for a cadaveric liver on the liver transplant list. Sometimes a person is small enough in stature that they can accept a split liver either from a deceased donor or indeed a live donor. In the UK you have to be on the list for a deceased donor liver before any talk of live donation - it is not a short cut to transplant.

Surgeons prefer to use cadaveric organs because it doesn't mean putting a healthy individual through a serious operation that could potentially end their life - many live donors actually have worse outcomes than the recipient. The donor has the same massive scar as the recipient meaning they too are incapacitated for some time post op. My husband was considered suitable for a live donation but we ruled it out - too many what ifs. What if I actually died leaving him with his new liver but no partner/carer/wife? How would we go on without us both being unable to drive, lift, carry things etc.? We ruled it out.**

None of this is at all applicable to you because all tests prove you don't have end stage liver disease, it's only when you do that any transplant talk would be had.

Katie

[Motik in reply to AyrshireK]

Hello AyrshireK, check the above link, that I post, please...

[AyrshireK in reply to Motik]

Yes this was another person self-diagnosing herself with full on end stage liver issues when on two occasions she was diagnosed (in hospital) with cholecystitis a.k.a. gall stone/gall bladder issues - as Richard pointed out in his reply both to her and you these issues can be intermittent. All her tests proved she didn't have cirrhosis either.

[Alibaba80 in reply to AyrshireK]

Katie I have all the symptoms similar to Motik and I have been diagnosed with Nodular Regenerative Hyperplasia of the liver which only showed in a biopsy. None of the other scans or tests showed this so please do not think that bloodwork and scans are always reliable because I can assure you they are not. I have never ever been so unwell in my whole life and every single part of my body is being affected.

[Fibro2021 in reply to Alibaba80]

I agree your comment. I've the same situation, a bunch of manifesting ESLD symptoms, normal scans and LFT but NRH by biopsy and laparoscopy. If many doctors don't know about this condition and find it difficult to diagnose it, then forum participants who don't have medical education don't know anything about it. It's no wonder. I hope that Motik's recent biopsy will help make the correct diagnosis.

[Str8jacket]

No one can be a live donor for you before you are diagnosed with liver failure. And then, each transplant center will have its own criteria. You will have to check with that center.

As far as your condition, no one here is a hepatologist or a psychiatrist. No one can diagnose or clear you of liver disease or anxiety. Sorry you still don't have answers.

You know what you are going through--keep searching for answers, don't waste your time debating strangers online. Whether you have liver disease or not, it won't help you, and is likely to just cause you more stress. Don't dismiss other possible causes of your symptoms in the absence of specific liver symptoms (more than just vague symptoms--red hands? spider nevi? swelling in legs or stomach? enlarged speen? sweat smelling like ammonia? etc etc). Don't convince yourself of a specific cause with only general symptoms.

Good luck to you, hope you find and get the help you need.

[Motik in reply to Str8jacket]

Once again, i like your answer, Str8jacketThank you and all the others for the support.

I have appointment this Monday with hep doc in the transplant clinic. I have to bring all tests and papers from previous exams. The idea is to find some medic who is really listening to me and to find the root cause of my condition. Today i also talk with my relative who is neurology professor, he guided me to that clinic.

Love you guys.

[Motik in reply to Str8jacket]

Ok, I was today in the new clinic. There is something wrong with the liver.. My ferritin is very high, my urea is pretty low, low creatinine..Tomorrow will continue with physical exams.

[Motik]

Thank you guys for resurrecting the topic and thanks for the support! Do you know the story about HIV... in the begging, Lots of homosexuals died due to rare cancer with no specific cause, common colds killed them, still noone knows what is happening .... years later they found the low CD cells count. The story is repeating even worse here..because HIV is not a death sentence any more, but NRH - and other related diseases are...

[Rm201]

Not sure what your point is re hiv.HIV was noticed by medics etc because gay guys in West were infected by hiv / aids. Hiv / aids origins actually tracked back to Congo in about 1920s and as we all know most African States have no gays.

[Motik]

OK, so my point was that there is need of medical (investigation) attention of non-cirrhotic liver diseases. Human suffering is no less terrible than cirrhotic patients.