My sister has a rare syndrome called alagilles, it affects her liver along with many other organs. She is now 21, I am 23. We have no option but to do a liver transplant. It is most likely that we will be doing the living donor transplant in Kings Hospital England. I am hoping to be a possible donor and am currently undergoing tests. My mother may also be a possible donor.
This operation is never done in Ireland and therefore can receive very little information about it first hand. I would be very grateful of any advice, contacts, details etc that anyone could offer.