So as ive posted hubbys blood results came back normal, Had a phone consultation and after being on the phone for about an hour with the dr and her having an update on whats been happening with hubby, i even told the dr on the phone that hes showing all the signs of cirrhosis, she gave a reason for it is that when liver is inflamed it can give symptoms of cirrhosis,So she suggested the best thing to do is for him to get to the drs so she could examine him etc.
So he seen the dr yesterday , she checked him and told him that he needs to change his diet (i had to laugh at that because he hardly is able to eat) and to stop drinking all together (which we knew anyway , hes not drinking all the time now and when he does it very little ) she felt his liver area says no swelling there, felt his stomach, she has no idea why hes in so much pain with his stomach, she has no idea why hes sleeping so much, basically everything wrong with him shes got no clue why hes so ill with all the symptoms.I said surly if you dont know then it needs more testing e,g bi opsey on the liver etc and she said there is no point because the bloods are saying its all normal. So shes not doing any investigation because she dont see the need. 'Her advice was to see the dietian and too give up drink or hes going to end up with cirrhosis because his liver is fatty,he said drs have been telling me the past 4 years since my first fatty liver diagnosis that if i carry on drinking i will have cirrhosis with in 2 years, he said 4 years later your telling me my liver is healthy apart from slight fat on there.
Before she seen him she went into see another dr to talk to him about hubbys symptoms and ask for advice on what to do? Which is the same dr that hubby confronted when he printed off hubby had cirrhosis and then saying he dont. So all in all before hubby went in there she already knew what she was going to do with him.
Hubby has now decided that unless hes practically dieing hes not contacting the dr and under no circumtances am i to get appointments done for him, because all its done is cause un nesscary stress for us both.
Im too exausted to argue it with him , im so shocked of how the Drs are ,its like its an effort and hubby is not the only one they are treating like it..And i dont want to hear but the drs are exausted, they are working extra hours, they have patients who are ill through no fault of their own. My answer to that is , drs (well at my surgery ) are NOT working extra hours, they are working the same hours they worked before,They all work part time, how do i know this, because i have a friend who is a receptionist there, regardless what the patient is being seen for they still have a duty of care to the patient, besides they need to also think of loved ones that have to watch their hubbys/wives/kids go down hill and not have a diagnosis.
Im still suffering side affects of my first vaccine ,had it a week today, so not only am i trying to take care of hubby im also having to look after myself.
Take care all.
Lyn..
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lyn3
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Aww Lyn I do feel for you. I don’t know but can you get a second opinion I am sure someone far more knowledgeable then I can advise how to do this. One thing I have read over snd over again is that bloods can say one thing but that is not the whole story. I hope you can get some answers it really doesn’t sound right. Please take care of yourself too. Sending a big hug x Pam
Hi Pam. Ty.Hubbys fed up of me wanting him to get seen and then he agrees and then hes yet again told there isnt anything wrong ,hes healthy in so many words, So hes not interested in a 2nd opinion, I told the dr that i know as well as im sure she knows that bloods can be so wrong on their readings but she isnt interested. This same surgery has been up in court twice because they have been responsible for 2 deaths ,either through miss diagnosis or given too many pills to take at once, hubbys been told this but he just says they know what they are talking about. Besides the fact not checking on his liver deeper etc she didnt even want to investigate his copd being worse. Her suggestion he walks more, i said how can he walk more if he can barely get out of bed for the pain hes in, she said well he should try, so yesterday he was up and said if your going up town today ill come get some exercise like the dr suggested,This was the route, walk to the bus stop (5 min walk if that ), get off at the town, 10 min ride, walk to the shop (2 min walk). sat down on the bench and had a coffee, he sat on the wall while i went into get shopping,walked back to the bus stop across the road,waited for the bus for 5 mins,traveled back home, and then walked the (5 min) from the bus stop to the house.Where it took us 5 /6 mins for us to walk to the bus stop, it took 15 mins to walk from the bus stop to the house because he had to keep stopping, he was out of breath and felt so unwell.He had to go to bed when he got in ,But its ok hes healthy drs say so.I just dont get it, i was talking to one woman whos been back and forth the same drs and they still dont know whats wrong with her , i said do they do indepth tests, she said no they wont do them and they are going by her blood results, i shared about hubby and she said its like they dont care isnt it? I said yeap , i hope you get the answers one day, she told me she was changing drs because she had had enough of them.
Is there someone/somewhere like PALS but for GPS? It doesn’t sound right to me I would have thought she would want to find out more as something is clearly wrong. Would your hubby consent to going to A&E or a walk in centre they may investigate further. We found when we couldn’t get in at the doctors we rang 111 and the next thing we were being called with an appointment. I still have to watch them as he is having bladder problems now and an ultrasound showed he wasn’t emptying his bladder so waiting on urology appointment but the GP misread the letter and tried to tell me everything was ok I had to push and he re-read it and said oh you are right then suggested a medication to try. Why was it not offered before. You are right it does feel as if you have to fight them every step of the way. I have to sing the praises of St James Hospital Leeds though they are brilliant.
Hi Pam..No there isnt anyone else where that he can see,Yeah you would have thought she would want to investigate more considering all his symptoms, she just kept saying i dont know why hes in so much pain, i dont know, i felt like saying im guessing you dont know the alphabet either then..So frustrating, Now i understand why years ago our grandparents used to called drs quacks, thank good ness not all drs are the same just wish hubbys drs were more understanding and investigated more, hes even told her that he finds it hard to go for a wee and when he does go he struggles, just realised on the phone she suggested a stool sample to check pancreas but not mentioned it at the surgery. Mind you i shouldnt be supprised at these drs,. im at the same surgery and a few years i took an over dose, i didnt go to the drs, i just rode it out, but i had shared it with a freind and she told me i really should contact the dr as my liver could be affected by it even though i felt ok, so i went to the drs, told them what i had done and instead of the dr saying what brought you to that state of you feeling thats the only way out, she said oh your forever taking overdoses, (im 54 and have over those years taken 3 overdoses...Ive not trusted going to the drs since for myself and now i dont trust them with hubby anymore.
Oh he was in A an E a few months back , with all the symptoms,sickness, blood in the sick also and was sent home and told it was constipation gave him meds, which he took and i spent the next day or two cleaning up where he didnt get to the bathroom in time (sorry gross i know),. I feel sometimes im living in a twilight zone and nothing is real anymore. We have both decided from now on to just carry on what we are doing and what ever life throws at us we will deal with it together, and if he gets in such a state and they suggest they can help then , they can stick it where the sun dont shine, but i will if anything happens to hubby that could have been dealt with and helped because they should have done more investigation, i will be dragging their backside to court.
I am glad you finally found lovely and very helpful drs and hospital now.
Try contacting pals, they deal with complaints and can be quite informative. My gp surgery referred me to a consultant who insisted I go for a biopsy. Change ur gp surgery ring around look on line for the ratings
Hi I really feel for you Lyn. When I saw my consultant late 2019 I asked if could have a fibroscan. He reluctantly referred me for one (he was fed up of me pestering him ) my bloods were okish. Anyway , had fibroscan and it showed I had compensated cirrhosis!!; It's very draining having to badger them all the time!! Hope they start listening to you both.
I have the same Dr not interested in sending me to specialist. My right flank is like having sandpaper inside. I’m scared to eat as it starts it off. Fatty liver last year, enlarged liver this year, gamma reading 68 but no no no need he says to send to hospital. He actually said he would be seen as incompetent for sending me. I was crying on phone to him, like he is playing God.
Morning seos..Its disgusting , i dont understand why they cant help people, its all about the money, its yet again putting money before the patient. What is wrong with your dr saying what he would be seen as, i mean seriously whos more important here you or his reputation. So sounds like he wasnt even interested in how upset you were either, See if it was me that was ill and not the carer i would be making an appointment every week and tell him/her over and over the same thing till in the end they sent me for the tests, they will eventually do it , as the saying goes, those who shout the loudest are heard the most. Its disgusting.Hope your feeling ok today, message me anytime for a chat if you need ok?Hugs
That's absolutely disgusting. Can you go to a different GP/ surgery? It's just not right, best sitting there saying this while you are in agony. My liver is so enlarged it scratches the capsule around it which causes the pain. I have pain 24/ 7 because I have many conditions, I have an hour or less sleep per night due to pain . I don't think my consultant thought it would come back as compensated cirrhosis!!! I really hope you are sorted. I only got referred to hospital in 2016 because a very good Dr at our practice got hold of my case. I'd had some surgery for something else in 2014 , I was in agony around my liver and this supposedly excellent consultant said mine was muscular!!!! Let's just say I'm not impressed!! PM me anytime of day or night.
Morning lynne. I really dont get it, if the bloods are showing ok,normal, but the patient is still very unwell surely then it needs more investigating, someone once said to me, if our bodys are in pain or dont feel normal its the bodys way of saying hey somethings not right here.It is very draining i agree, for the patient and for carers like myself..Hope your doing ok lynne.
I am sorry to hear this, what a lot of stress! Is there a possibility of you being able to change doctors surgeries? After I saw the dietitian and started following the plan I felt tons better with a lot more energy. I was given a 6 meal a day plan, only small amounts but it was easy on my stomach and had the right balanced nutrients to gain some energy back.
Hi Jazz,, He wont change drs because hes said they have known him since he was born and he just wants to see drs who have known him rather than he having to explain his history over and over...So good to hear your feeling alot better :). keep up the good works.
You have a stubborn one there 😊. I understand his point though. Maybe could you try the 6 meals a day with him? Mine wasn’t a main meal each time, maybe a piece of fruit or a protein shake, maybe a small amount of homemade hummus.
Morning jazzjam. Hows things?Yes your right he is stubborn, His stomach cant tolerate certain foods anymore, The amount of food or should i say lack of food he should be skin and bone but he isnt. He manages to have 2/3 meals a week , he used to love bananas now they make him heave ,It takes him 3 sittings to eat just one meal thats only big enough to feed a child. so its not through lack of wanting food but because of how ill he feels all the time he struggles to eat. He does make sure he drinks a pint of milk a day, even when hes ill in bed i take him a pint of milk up which he sips every time he wakes up.
I am thank you, plodding on 😁. Its strange how he has not lost weight isn’t it. Is it the liver that is making him feel sick. I know its an old one but mints help when I feel sick. Sipping peppermint tea? Or even just water with a few sprigs or mint or ginger, that good for sickness. If he can stomach them. If he is drinking a pint of milk do you think he could stomach it done as a smoothie where you can add some fruits or veggies? Or blend some oats into the milk?
Morning jazzjam..Good to hear your plodding on.Yeah it is strange how he isnt loosing weight, hes loosing some because hes had to put his belt down a notch but considering e should be under weight, i do wonder if alot of it is water retention. hes wont take the water retention meds, Not sure if it is te liver making him feel sick because according to the drs his liver is 90 percent ok. Regarding the milk ,he will only drink it plain, he wont drink smoothies. he will only eat bananas and grapes but then hes as he puts it have to be in the mood for fruit. Ive never known such a fussy eater.Hope your still doing ok?
Don't avoid getting appointments. You need to look after your families health I receive alot of hostility from GPS like I'm wasting there time but just be pushy, it's your health you need to be in control of it. Unfortunately, you are one of many and most of them treat u like that. Persevere and get what you want.
Morning jazz. Unfortuntaly i cant force hubby to see a dr, and hes so fed up of going to the drs to be told every things normal, your healthy blah blah he doesnt want to go anymore,besides the fact i dont know when hes going to be well enough to get to the drs, thats why i was so annoyed about the last time because it took all his energy to get there and he was exausted when he go back home.Just taking one day at a time with him.Take care
I do have sympathy for your husband and everyone else who is struggling with liver problems, and cannot get any support from some GPs Not all doctors are incompetent with this disorder, thank goodness I’ve had my fair share of both. My health is going down and down and I have to be my own physician nowadays. Some of you are obviously experiencing some of the same stuff. I wish I was well enough nowadays to record all your experiences and write up a research report but, I just have got nothing left to do this. In my working life I was a Researcher in the Health Sciences, so I had the skills to do it, but no longer the capacity. I hope one day someone will feel well enough to accomplish this.
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