Results from Biopsy

[Martyn1980]

Good morning, I posted for the first time in January after finding out from a Fibroscan that I had NAFLD, the results of the scan were at the very high end, and was advised by the liver nurse that the scan indicated fibrosis/cirrhosis of the liver.

If you can remember my post at the time I was devastated, could not eat, sleep and constantly crying, I could not believe what was happening, at that moment in time I decided that I drastically needed to change my lifestyle, I did drink at weekends, overweight and never exercised, I had high blood pressure, high cholesterol and Type 2 Diabetes. I throw away the Alcohol and totally changed my diet and made sure I walked every day, come rain or shine. I really needed to give myself a fighting chance.

I have now lost nearly 4 stone, just had the results back from a recent blood test and my blood results for my diabetes is in the normal range with blood pressure and cholesterol levels are normal, the diabetic nurse has reduced some of my diabetes medication with a view to slowly removing further medication if my blood sugar levels remain normal for 12 months. You really do have to not be afraid of contacting the medical profession for advice and help and I felt I was getting forgotten about.

I had the Biopsy in February and an Enteroscopy in March, the results from the Enteroscopy was normal, but as expected the results from Biopsy found that I have Acute Fatty Inflammation with Bridging Fibrosis, still to this date I am not clear what this actually means, Unfortunately, I had to chase up the results with the liver nurse as I had not received any communication about the results, I was told that the Consultant which I was under has left, and there is a delay in finding a new consultant to take over the cases, I have now received a telephone appointment for the end of the month., so hopefully will get to understand what all of this means and what quality of life I can expect. Please leave Dr. Google alone, I was constantly looking on the web and convinced myself I was going to die in 2 to 3 years, I had even taken out a funeral plan.

I am experiencing some slight swelling and pain in my right side, which is constantly there. I do have some good day and some bad days, but I am only 41, with a young family who depend on me, So I have to be positive and have a positive outlook.

the constant worry, the unknowing and the metal strain these causes are unbelievable.

Thank you for reading, It is good to let off some steam with people that understand. Take care everyone.

Martyn

[Hidden]

Wow... well done you . You should be very proud of yourself. Keep it up and thanks for the update.Laura x

[Martyn1980 in reply to Hidden]

Thank you Laura, appreciate your kind words.

[Worried2021]

Hi Martyn it sounds like you have made amazing changes! Well done in losing over 4 stone and making changes that is really the best thing you can do for your liver. The bridging fibrosis was mentioned at my appointment and I was F3/4 so not quite cirrhosis but very close. Healthy eating water and exercise was the advice and back in 9-12 months to see if things have improved. Hopefully you get the appointment and final information shortly and can put the worry behind you. Keep being positive you are doing fantastic!

[Martyn1980 in reply to Worried2021]

Hi, Thank you for your kind word and comments

[TT-2018]

Martyn,

It’s great to read such a motivational message, keep up the good work and thank you for your sharing your positivity. Good luck with everything in the future.

Mark

[Martyn1980 in reply to TT-2018]

Thank you so much Mark. Take care 🙂

[Readlots]

Well done Martin, I’m now feeling guilty but inspired. I really do need to take myself in hand and follow your lead. The weather is mild and the nights drawing out - I’ve got no excuse for not walking every day.

[Martyn1980]

Hi Readlots, thank you for your comments, it is really difficult and hard. I am still frightened and worried about my future, hope when I finally get to speak to the consultant I will know what I am dealing with, I am a private person and don't normally post, but really wanted to share my journey so far. Little changes and small steps at a time, day by day. Take care

[Readlots in reply to Martyn1980]

I think you’ll feel better once you’ve had your appointment and had all your questions answered. My mum was diagnosed with PBC in her 50s when there was no treatment and she was given 2 years to live. She’s now 75! She walks every day and watches her diet. I know it’s scary and Dr Google can scare the pants off you!

[Martyn1980 in reply to Readlots]

Wow, that's great news to hear about your mum. Thanks for sharing that with me.

[jazzjam]

Wow you have done brilliant Martyn! Very inspiring. I know it is hard but try not to worry about your consultation, you have done loads to help yourself, whatever is going on will not change if you worry (sorry to be so blunt). I try and be practical, thats just my coping mechanism, I understand it is hard when you have family. Write down everything you want to ask so you don’t forget. I bet there is an improvement from your first ever blood test and one now, the liver does like healthy food 😊