Primary biliary cholangitis

[Mrsryan247]

Has anyone been diagnosed with PBC with an “unequivocal” blood test result?? Mine came back at <20.1 my Ggt is high at 138

[hells456]

My PBC was diagnosed with only blood tests. All my results were high, but it was the raised ALP and positive AMA (any amount is positive) that gave a definite diagnosis.

[Mrsryan247 in reply to hells456]

Question am I reading this correctly? What is the reference range for this test, may I ask what your numbers were?

[hells456 in reply to Mrsryan247]

My ALP was 800 (max around 150), ALT 350 (max 100 or so) and bilirubin 46 (max about 20). My GGT, IgM and IgG were also flagged as above max but I don't remember the numbers. Do you know your ALP level?

I wasn't told my AMA level, just that any measurable amount is a positive result and mine was positive. I think <0.1 units was a negative result and <0.9 units was a weak positive but I'm not sure on that.

I would ring your doctor to ask for clarification. Have you been put on urso?

[Mrsryan247 in reply to hells456]

Thanks from what I’m gathering from a lot of people is any measurable is counted as positive I’ve also heard that false positives are rare as the sensitivity of the test. My gut is telling me that it’s PBC is or something related to the liver/ducts, again thank you for the helpful information