Hi all
My partner went for a fibro scan yesterday.... they didn’t want to give him the final results until they had see he’s final blood and said the doctor would call him but she did say give him some numbers?? 8.1 and 400? Does anyone know what these stand for please? I have an idea.
Hi,
I believe the first may be his fibrosis score, and the second might be his cap score. The first measures the degree of liver scarring and the second measures fatty change in the liver.
There is some information on the internet about what these scores mean, but the results are interpreted differently depending on what the issue is with the liver, particularly with the fibrosis score. His dr will be able to take his results and look at them as a whole and then talk to him about what they mean for him as an individual so please don’t google it too much, it’s best to wait for his dr.
I don’t know whether that’s helpful or not, that’s my understanding of it all though from my own experience x
THE PERSON WHO DID THE SCORE EITHER DOESNT KNOW HIS/HER JOB OR ARE TOO LAZY I WAS GIVEN RESULTS AS DONE AND THE SPOKE TO MY LIVER CONSULTANT DONT GOOGLE, JUST ET WELL, STAY HEALTHY AND WAIT FOR YOUR FOLLOW UP APPOINTMENT
A CAP score of 400 (the maximum possible score) would mean that he has an extremely fatty liver. Fatty liver on its own is considered benign but a FibroScan score of 8.1 means that his liver has some scarring. The scarring might have been caused by alcohol (in which case he should stop drinking) or he may have NASH. If he has NASH (the only way to determine this is a biopsy) it can be very hard to stop and unchecked NASH can eventually result in liver cirrhosis.
Your partner should avoid all liver stressors e.g. alcohol & non prescribed medication and try and gradually get his weight into the healthy BMI range by adopting a healthy diet & getting regular exercise. The aim would be to gradually reduce the amount of fat infiltration in his liver.
After following a healthy lifestyle for a year he should be retested. If his level of fibrosis remains unchanged or drops then his lifestyle changes are working. If he has more fibrosis then he probably has NASH and needs to go all out to stop it progressing or at least slow it down. Lifestyle changes now could see him avoiding serious problems later.
Hi and welcome,
Whoever performed the FibroScan has a duty of care to explain the score and what that means. Of course blood tests and other imaging scans will also play an important role in a diagnosis.
No one on the forum is medically qualified to interpret this result so please do go back to the medical professional who performed this test for more information.
Keep us posted.
The technician who did my fibroscan said she wasn’t allowed to tell me the results. She said I must speak to the Consultant. It took me 4 months to speak with him by which time I’d already discovered on Patient Access that the result was Cirrhosis. I’ve never heard of this CAP score till today (15 months after diagnosis! What does it mean? I keep asking the Consultant for ALL my test results from the last 2 years. He won’t give me them!!! I just found out (3weeks ago) that I only have months to live (from him again and again from the GP Patient Portal). If this is Duty of Care, I’m not too impressed. I can’t get to see him till 20th August. I’ve seriously thought of claiming medical negligence (which is against my own values), but I’m sick to death of the way I have been treated. Some of you will say I must contact PALS but I’ve done that and got nowhere. My mental health has deteriorated dramatically because of all this. I was referred by a private counsellor to the Mental Health Services. They are not interested in helping me. Friends tell me to ‘get on with my life and make the best of whatever time you have left’. I have no quality of life, my physical and mental health are at rock bottom. I have most of the symptoms associated with NASH and Cirrhosis. I have nothing left to give others which was my motivating life force. I’m sorry if this has depressed you Dazakella. That is not my intent. I’m sorry to admit that I’m having an isolated ‘Pity Party’ which can be the same or similar for all liver patients, when they are treated so badly by the medical profession. There is absolutely nothing I can do about my situation anymore. GPs do not know what to do to help me. The one and only liver Consultant with whom I have been able to deal with, couldn’t care less about me..........fact, not paranoia!!!!! I’d love to be optimistic, but even the sunshine is eluding me at present!!!!! I truly hope your stories are better than mine. Not everyone is surely experiencing things like myself? I hope not, I surely hope not xxxxx
I’m sorry I can’t add on the figures but I think Edward has given some great information there.
I will say, each time I have had a scan the person scanning has never told me what they have seen. I am always told that they are not allowed to say and I have to speak to the doctor about it.
This is my experience too. When I had my fibroscan the nurse doing it didn’t tell me the results I had to wait until I saw my consultant 4 months later to be told what the results were and what they meant for me.
Hi
I think the 8.1 is the amount of scarring and the 400 is the fat.
I must be very fortunate. My consultant put me in touch with a liver nurse. When I had my fibroscan early on this year I was sent straight into the the liver nurse who told me everything. I have her number if I am worried she is there to assure me. I feel very lucky to have her. I wonder if any of you have a liver nurse. Xxxx
Worrying times
fibro scan results
Final Stages
Evening all
Fibro scan
