Hope everyone is well and coping through these crazy times.
I'm going OK - like everyone else I've had to forego my usual consultant visits so I'm a little apprehensive about the overall health of my liver but I'm feeling generally OK. Tired quite easily mind you and a little paranoid. I've arranged for some bloods to be taken this week and these will be added to my record ready for my next consultant visit whenever that might be.
Still have massive issues with sleeping but that's just the way it is. I'd rather be tired than the alternative. Come July 11th I'll be 365 days sober. This time last year I was in Florida and very sick and refusing to admit it. Drinking almost a litre of bourbon a day and taking all sorts of risks.
Anyway - Weather has been kind, although all holidays canceled and I'm STILL fighting with Virgin to get my cash back.
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Xenom0rph
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Great news on your continued sobriety 👍 Wow, nearly a year. Nice work.
I think the situation we are in gives us too much time to dwell on things and hopefully the consultant will have some more positive news than you are fearing 😀
Unfortunately once we have had some bad health news, we are constantly on high alert looking for the next symptom, ache or pain. I was awaiting some blood results myself but reluctant to chase up. I’m taking it that no news is good news 😂 but hey, mustn’t bury head in sand either, typical addict to do that 😉
Let us know how you get on when you do get to see someone.
I have just reached my 9th day of sobriety and feeling pretty smug 😎 BBQ on Sunday and did not touch a drop and I actually was one topping up 2 guests glasses (social distanced of course). There is even a third of a glass of red on side in kitchen. I neither crave or want it. I actually sniffed it on Sunday and made me gag! Almost like my body telling me it’s poison. Chuffed to bits with that.
But hey, let’s not be complacent. I know can swiftly turn if I don’t keep in check or have a stressful day...in fact I’m going to tip it down the sink now.
Anyway, hope everyone enjoys sun safely, lotion, hats, shade etc. Don’t wish to add sun burn to our ailments! 😂
Congratulations on your forthcoming sobriety anniversary. I am a couple of months ahead of you and feel pretty well most of the time. I was really tired for the first few months but try to eat carbs with every meal for energy along with protein to reduce muscle wasting. It seems to be working to combat the fatigue but not helping on the weight loss front. I am on six monthly bloods and ultrasounds now which is great as when I was first diagnosed, bloods were weekly. Some of results are still slightly raised but 90% improved. I guess its a work in progress....
Never had ascites or HE so can't complain too much.
Thanks. I think we've had similar backgrounds. I've never had any of the serious physical issues that comes with the disease like ascites or HE but unseen it a lot when I was on the Liver ward. People lying there at three times their normal size and one poor guy that had awful hallucinations.
I swore I'd never be back there.
I have a lot of injuries from running out of talent on motorbikes on racetracks and was taking a lot of painkillers but I've just decided to pack all of them in and that's my next challenge. Codeine withdrawal!
I've become very intolerant of wine in food- used to cook with it all the time. If I do use it I boil 50% of it first and then cook the rest off- seems to work for me.
It’s not for everyone. Some alcohol definitely remains, but in my case I’m not affected whereas drinking a glass of wine would be a huge no no. Psychological I guess.
when i first joined this channel about 8 years ago when I first came off drinking wine-I developed a weird intolerance of anything with alcohol-even really small amounts-I've read something about alcohol reversal...it took me months for this to normalize. I'm rather hoping I have something similar but I think it's wishful thinking. It's been nearly 9 months off the wine now-no signs of real improvement -however everything stable-nothing major and no diagnosis despite my suspicions.
Well l guess it's not relevant to you as you don't have or had liver disease. If you did you would understand you can not consume alcohol even in cooking. This is afterall a forum regarding liver disease not suggestoons on how you can get away with consuming alcohol
What so you can continue to tell people who may have severe liver disease that it's ok to consume alcohol if its used in cooking?? No l prefer to keep an eye on what BS you are dishing out
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Ascites - why do they come and how to make them go
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Advice for going to liver clinic on Monday 
Going back into hospital in December
On going PBC investigation! 
