Liver disease/Ascites

[amc78]

I am new to group, my dad has end stage liver disease, he has been back and forth to hospital since January as has severe Ascites, his medication has been increased to 300mg spironalactone along with others.. anyone else got similar experience? Thanks

[AyrshireK]

Sorry to hear about Dad and his situation. Has he been getting drained of his ascites? Make sure if you see building up of fluid he is treated. Even with the current crisis they will treat ongoing illness like this as it is dangerous.

Katie

[amc78 in reply to AyrshireK]

Hi, thanks, yes he been out since March and been treated every 2 weeks since despite having meds increased.. he still getting lot fluid build up.. I thought having his diuretic increased, it would help but it doesn’t seem to be.. he now up to 300mg of spironalactone x

[AyrshireK in reply to amc78]

Is Dad following a strict low sodium diet? That can ease ascites. However, there sometimes does come a stage where ascites becomes diuretic resistant. Is Dad a potential candidate for transplant?

Katie

[amc78 in reply to AyrshireK]

Hi, I did ask the question about transplant and they said they think he is too ill, they don’t think his body would cope with it, do think it’s unlikely.

Re low sodium, yeah we are trying to ensure this. And also have got him on the supplements from us dietician..

[Hidden]

Good morning and welcome to this forum, I am sure you will receive a lot of support. I am very sorry to hear that your father has end stage liver disease, it is so worrying and stressful for every one concerned. There is information on our website which may be useful, apologies if you have already seen it :

britishlivertrust.org.uk/in...

britishlivertrust.org.uk/in...

britishlivertrust.org.uk/in...

britishlivertrust.org.uk/li...

You may also find it helpful to talk to one of our liver specialist nurses on our free helpline:

0800 652 7330 Mon- Fri 10:00 - 15:00

regards

[Lam1e]

Hi

I had regular drains for ascites for 12 months pre transplant! It got to the stage where I was having the drain done every 8/10 days. My kidneys hated spironolactone and furosemide therefore they were stopped. My team were/are amazing and the regular drains meant I had a really good quality of life! Some other patients were given a rocket drain which meant there ascites was managed at home, but the team recommend what they think is best.

Hope your dad stays safe and well.

[amc78]

Hi, this is really helpful, thanks.. he has been taken off the ferusomide.. how r u now after transplant? how long did transplant process take? Thanks