Pain relief

[Pellegrino]

Hello, I was wondering if anyone had any suggestions regarding neuropathic pain relief, specifically for all over body/nerve pain with cirrhosis. Also, at what stage of cirrhosis does this typically occur? Many thanks.

[AyrshireK]

I don't know what type of pain you are experiencing but it isn't typical or a listed symptom of cirrhosis at all. There can be lots of causes of neuropathic pain. healthline.com/health/neuro...

Again this is something you need to run past a doctor.

[Pellegrino in reply to AyrshireK]

It's basically a nerve tingling directly under the skin, a kind of cytokin pain.

[Pellegrino in reply to Pellegrino]

I hope that makes sense K and it would be good to see if this chimes with anyone else.

[Hidden in reply to Pellegrino]

Hi

Where on your body is your pain. My liver is so enlarged that it has stretched the capsule around it which causes the pain as the capsule us where the nerves are. Davianne /David will probably come on and tell you the same thing as he also suffers with it. I have compensated cirrhosis and this is what my consultant and now also my liver nurse have told me. Love and hugs Lynne xxxx 😘♥️🌻🌹

[Pellegrino in reply to Hidden]

it's basically under my skin, also dizziness and headaches on right side.

[Hidden in reply to Pellegrino]

Could you make an appointment with your GP xxxx

[Pellegrino in reply to Hidden]

Will try as usual, hard to get something in person given Covid-19...

[Hidden in reply to Pellegrino]

Hi

At our surgery they do a telephone consultation first and if they feel the need to see you they will book you in when nobody else is there and the drs are suited and booted. Please take care and stay safe Lynne

[davianne]

Hi Pellegrino,

As Lynne/Oldham 65 says. we both suffer from capsule pain, all round inside the rib cage. I also suffer from peripheral neuropathy , which does give tingling and/or numbness in my feet, lower legs, hands and arms, but not on my torso so far. My feet are totally numb, which makes walking on uneven surfaces challenging....looks like I'm staggering, which can be a bit embarrassing.

I hope this helps,

David

[Pellegrino in reply to davianne]

Many thanks for your kind and informative message David. Best wishes.

[Cb1963]

I have had neuropathy for nearly 8 years, and the pains are intense to put it mildly, they come in different guises and sensations, mainly in my legs and feet and hands,pins and needles, burning sensation, shooting pains etc,but at the beginning when I stopped drinking the pains were coming out in my chest,knees, bone area anywhere really, it is a severe pain and very difficult to treat, painkillers don't touch the symptoms, and you get prescribed medications to help from the doctor,maybe get your vitamin B12 checked over, sometimes this can be low definitely do not smoke, unfortunately the symptoms I have get confused with low B12 problems, so I have both problems, and it's trying to keep on top of both of them makes it very difficult to keep the symptoms away, muscle twitching is a classic with B12 and tingling tongue, and tinnitus, so its just a thought for you, just in case these are factors in the mix,sorry its not a magic wand of a answer, but hopefully it will help you along the way, thanks.

[davianne in reply to Cb1963]

Hi,

I have a lot of the experiences you describe with my peripheral neuropathy.

I take Folic Acid every day for B12, and previously had a course of jabs for low B12. I also suffer with Meniere's Disease, which is akin to tinnitus, but didn't know that it could be connected to neuropathy. I have a trapped sciatic nerve at the moment, and it gives the sharp, high intensity pains you describe. I use a TENS machine and electric heat pad to ease it a bit.

I hope this helps you,

David

[Hidden]

Good morning Pellegrino,

I see our lovely forum members have been sharing their thoughts and experiences.

I hope that has helped.

May I also suggest you discuss new symptoms with your own doctors? It is important to seek advice and not simply assume they are part of your existing diagnosis. I know people are reluctant to use the NHS just now, but the advice is the NHS is very much 'open' and there to help if you are unwell.

Take care,

Trust9

[tracyliz]

I was diagnosed with neuralgic nerve damage in my legs due to cirrohsis and my legs were so painful that I couldnt even touch them. I was put on Amitriptyline and told it is used for acute nerve pain but that it would take at least 2 months to start working. It did take 2 months and now I don't have the pain thankfully but I now have to take the drug for the rest of my life for fear of the pain coming back.

Hope that helps.

[Fides]

Sounds a bit like diabetes pain, are you getting sporadic sharp pains that comes and goes, or sustained pain in a particular location. For me the only pain pills that work are panadol and oxy, the latter I have in the hospital, the former I use for sustained pain. For the neuropathy in my feet and legs that causes sharp stabbing sporadic pain I don't use pain pills.

[Pellegrino]

So cirrhosis-induced diabetes?