Husband Acting Strangley ....... again - British Liver Trust

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Husband Acting Strangley ....... again

Bs1524 profile image
33 Replies

After my post the other day the lactulose seemed to kick in and bowel function was going back to normal and confusion easing.

Then about 2am this morning I was woken by a loud thump and he is on the floor I done know if he tripped or fell but he had banged his face. Then this morning he is stood by microwave making his porridge when he I hear another bang and he is on the floor. He said he was miles away and just went back. Before this I found him with scissors cutting a tea towel because it was wet???

My first thought was the HE was returning but following this he had his porridge and went back to bed and he is still there dead to the world.

I now think he has had too many Zopiclone. This was the one thing he asked for me to let him be in charge of and I have but now I think I need to take control.

I said I,was going to call,the surgery and he told me to “Keep my f@cking mouth shut”. I am going to wait until he wakes up (he has now missed his meds) honestly I could cry he thinks I a, being mean and “I should put myself where he is”

Thanks I just needed to rant x

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Bs1524
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33 Replies
AyrshireK profile image
AyrshireK

Does he get himself up after these falls or does he need help? Still sounds like HE especially with the combative nature too. T/p assessment can't come quick enough.

Katie

Bs1524 profile image
Bs1524 in reply to AyrshireK

He does get himself up a bit of a struggle with his swollen legs and very dodgy knees.

davianne profile image
davianne

I too think it sounds like HE.....I used to get verbally aggressive as well. I too used to have these, what I call, blackouts, only lasting a few seconds, not realising how I got to be laying on the floor. I needed help to get up again, with no recollection of what had happened. Is he still drinking?

David

Bs1524 profile image
Bs1524 in reply to davianne

No absolutely not drinking. He can get himself up. He has just woken up and remembers being odd but has agreed that I can control the Zopiclone. The way he was was different to the other times.

davianne profile image
davianne in reply to Bs1524

Hi, I wasn't drinking when I had my issues, I just dropped like a falling tree, and hurt myself quite badly in the ensuing fall.

Ah, that's good your now in charge of the Zopiclone.

I hope this means an end to these episodes.

Take Care,

David

Bs1524 profile image
Bs1524 in reply to davianne

I would like to think it is the end of the but ......

ThreeSmiles profile image
ThreeSmiles

As David and Katie have said it sure sounds like HE to me. My stories are endless and some I remember some I don’t. A couple of the remember ones are trying to put my shirt on my legs and obviously getting cross when it didn’t work, then brushing my teeth with Shaving foam - I gave up..Then one of the not remember ones is resisting three family members trying to get me downstairs to the ambulance. But like everyone of us who have had HE the stories are nearly endless....

I don’t know Zopiclone - similar to Rifaximin? Rifaximin didn’t stop my HE episodes completely but reduced the frequency.

Hope you can get things under control a bit...

Oh - and Rant away.....

Good luck

Bs1524 profile image
Bs1524

Zopiclone is a sleeping tablet and I think he got mixed up. When he fell in the bedroom it was more of a trip as he had left his clothes on the floor obvs. The fact that he has been asleep,for hours today makes me think he overdid them I think they are more a relaxant.

AyrshireK profile image
AyrshireK in reply to Bs1524

Liver disease

Patients with liver disease eliminate zopiclone much more slowly than normal patients and in addition experience exaggerated pharmacological effects of the drug.

I hope his liver doctor knows he's on this medication because it should only be used short term and could potentially be complicating matters.

Katie

Bs1524 profile image
Bs1524 in reply to AyrshireK

Hi yes he is fully aware I took the complete list in for him. I think the effect of not sleeping at all was more detrimental then the Zopiclone. I have them now. X

AyrshireK profile image
AyrshireK in reply to Bs1524

Sleep deprivation was the first symptom that my hubbies doctors said was related to his HE - that's what got us sent from local hospital to Edinburgh.

I do hope they assess your hubby soon because it's getting dangerous for him now.

Wishing you both all the very best, Katie

Bs1524 profile image
Bs1524 in reply to AyrshireK

Thanks, I am worried and he is too he feel he is back where he was last year. He does seem to be no better the meds are just keeping him at this level which is not great he cannot do anything. xxx

Bootandall profile image
Bootandall

I think you should call the doctor now while he is asleep!! There better be a damn good reason for him to be on sleeping tablets when he is having liver issues. Ask if you can safely detox him at home or if he needs acute care. I realize this isn't ideal in this day and time, but he could overdose! I am so sorry for you both, this really sucks.

Bs1524 profile image
Bs1524

They are not full on sleeping tablets more a relaxant the consultant and doctor are fully aware that he is on them. They prescribed them for him.

Bootandall profile image
Bootandall in reply to Bs1524

Oh sorry if l misunderstood the situation. It sounded like you were saying he took too much of them, which was very concerning. I am sure he is in capable hands now (yours). 👍😊

ThreeSmiles profile image
ThreeSmiles in reply to Bootandall

Yes bs did say that Boot - but obviously meant in a different way...

BettyAndJoh profile image
BettyAndJoh

My husband had cirrhosis. He also had HE. He fell all the time. He couldn't get himself up without help. He slept 23 hours a day for 3 days, slipped into a coma for a day and a half, then passed away peacefully. Please get your husband help immediately.

My husband has been gone 15 months and I miss him terribly. He was just 52 years old.

Bs1524 profile image
Bs1524 in reply to BettyAndJoh

Hi I a, so sorry to hear about your husband. i am trying to get him to see he needs help but the GP isn’t really engage with me about him and given the current situation I do want to rock up in A&E with him.

I do have any support with this such as other family members his Dad is 86 and caring for his partner with dementia and lives a good 50 minute drive away.

ThreeSmiles profile image
ThreeSmiles in reply to Bs1524

Hi Bs

Not sure if it would work but have you tried 111online - that will give a good indication of what you should do. The other thing is you definitely need to see/talk to a different doctor - imho. This isn’t the time, in his situation, where anyone should be beating about the bush.... seriously.

Miles

Bs1524 profile image
Bs1524 in reply to ThreeSmiles

I tried but could get through on 111. He seems brighter today I thought he was having another funny turn when he said the pillowcase doesn’t fit him. Then he pointed out I had put a pillowcase away with his clothes.

I fear his slow speech is due to the alcohol damage which the consultant pointed out but it is hard to understand what he is saying.

He has just taken some more lactulose without prompting from me and is have a spot of lunch so hopefully .....

ThreeSmiles profile image
ThreeSmiles in reply to Bs1524

Bs - I always use 111online at first and don’t have any problems with getting on that so far. Worth a try to start with - at least if he has another episode. With HE it got to the point where they told my wife to bypass doctors and A&E and bring me straight to Medical Assessment. Which she did and I was always admitted....

Good luck - hope the lactulose does something 🤞🤞 - well at least 3 somethings, preferably 4... sorry TMI

Miles

Bs1524 profile image
Bs1524 in reply to ThreeSmiles

I a, thinking of starting a chart with star for each output 🙄

ThreeSmiles profile image
ThreeSmiles in reply to Bs1524

Haha good idea - Gold stars? - what happens when he gets 4 👍

Bs1524 profile image
Bs1524 in reply to ThreeSmiles

Hmm 🤔 I haven’t thought that far ahead 😀

in reply to Bs1524

Hi BS

I've just been reading all messages and agree with your chart star comment and understand how tough and concerning it must be for you! I'm so glad Miles and others are by your side so you'll never be alone.

🤗

purple64 profile image
purple64

I can relate to this. My husband hasn't fallen but getting dressed and trying to put his top on as if they were trousers, cardigan upside down inside out, never knowing what day it is or time. I was beginning to think t was dementia. All the symptoms seem similar. We have a log burner and he swept up some hot ash the dustpan melted which set off the smoke alarm while he carried the dustpan to the sink. This was 5am and because the dustpan had melted it dripped melted plastic on the carpet and kitchen floor. It's such hard work. Now he has gout in both knees 🙄. He was also prescribed zopiclone as he suffers from insomnia.

Bs1524 profile image
Bs1524 in reply to purple64

It is horrid isn’t? I am so tired as I sleep with one eye open worrying just in case....

purple64 profile image
purple64 in reply to Bs1524

It is horrible. Me too every time he gets up I wake up never get a proper nights sleep

Jason68 profile image
Jason68

As someone who has had HE and aware it could strike again I feel your pain. I have been abusive to my partner verbally, which is very not me. It is very upsetting for her seeing me this way. I take my meds and lactose (which is a balancing thing) at present as long as I have 3 to 4 stools a day all has bee well. I will stay up as long as required to ensure I meet my mark. Good luck.

ThreeSmiles profile image
ThreeSmiles in reply to Jason68

Hi Jason

If you recognise that you have been abusive that is something “positive”, isn’t it?

It’s also good that your lactulose is working 👍. When it is working do you still have episodes if only minor?

Sorry too much info I know but HE was a nightmare for me - well HE is a nightmare for anyone!!

Miles

Bs1524 profile image
Bs1524 in reply to Jason68

Yes he was doing ok until the Heptologist said to cut his lactulose to 15ml it took a little while but then his bowel movement stopped but he didn’t think anything of it and I was out at work all day so never realised until it too late.

Bootandall profile image
Bootandall in reply to Bs1524

Double it right now, seriously. The diarrhea is not a fun thing, but getting the toxins out will have a near instantaneous result. He hasn't lost his sense of humor (pillowcase doesn't fit lol), so I am hopeful you can help him to come around a little more. Hang in there honey! 🙂

Bs1524 profile image
Bs1524 in reply to Bootandall

Thanks Boots I’m trying best I can x

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