Is this normal?

[eekk]

After Tace and the hospital saying they could offer my family member no further treatment we have literally been left alone with no medical help whatsoever for over 2 years only pain killers.

Is this normal?

Is there anything at all we could try any trials any new drugs?

Anything?

[Hidden]

Sadly with certain liver conditions such as liver cancer, there is only so much that can be done.

If the cancer is in an advanced stage and is terminal as in this case, there are very little options available. This is always a sad time for many people including the doctors, nurses and care staff as they feel so helpless.

The only real option available is continued palliative care. I see from your previous posts that you talked about a family member who was terminally ill. I take it, this is the same person. If so, then they've had two more years of life. So , they are fighting, and holding on.

If you require any further information about please try visiting some of these sites for more information.

Marie Curie: mariecurie.org.uk/help/supp...

NHS Palliative Care: nhs.uk/conditions/end-of-li...

Cancer Research Palliative treatment: cancerresearchuk.org/about-...

There is also CarersTrust who maybe able to help you: carers.org/what-carer

If you need someone to talk to, then I'd recommend calling the lovely staff on the The British Liver Trust Helpline: 0800 652 7330

Hang on in there, your doing a fantastic job as a carer

[Hidden]

Hi eekk

We are reallysorry to read that your family member is so unwell. If they wanted to, you could discuss research/ trial options with the consultant.

However, It may be that your family member is going to need supportive/ palliative care. We devised a really useful booklet for people with advanced liver disease or cancer and it details how to access this important care:

britishlivertrust.org.uk/in...

As Richard has said, if you would like a chat, out helpline is open today.

Sending you warm wishes

Trust1

[eekk in reply to Hidden]

He is on palliative care which basically means us just at home for a couple of years with only pain relief meds

[Hidden in reply to eekk]

Can the GP come to assess them and intervene to see what can be done?

[eekk in reply to Hidden]

Cannot get a consultant nearby it is a long drive .Too long and we are told there is no consultant local

[ziggyzygon in reply to eekk]

Sorry to hear your situation, Marie Curie can help you the help and support line is 0800 090 2309 they have trained nurses who can talk through your situation.