Pbc

[Shezza123]

Hi I’m sherrie and I’ve recently been diagnosed with liver disease pbc I was wondering if anyone as this and how they deal with the itching of the skin ? , it drives me up the wall and the feeling of being so tired all the time ..

[Hidden]

Hi Shezza123,

My itch got under control after being started on rifampicin , only thing that worked for me. As for the fatique, i have not been able to win that battle, just learnt to do things when I can.

Take care

Angela xx

[Shezza123 in reply to Hidden]

Hi my itching had been loads better not constantly but recently it comes and goes again but when I do get it it’s bad and to the point where I bruise

Thanks you

Sherrie x

[Hidden in reply to Shezza123]

Mine was constant and always covered in bruises and cuts. Got where i was using a fork to scratch cause my fingers were so sore. Its a horrible torturous things and i am thankful every day that it is under control now.

Xx

[Shezza123 in reply to Hidden]

Another thing Is alcohol, I’ve never been a big drinker but if do have a drink now especially a spirit it makes me so sick and it seems stupid but at age 43 to be told c Ac my drink any more just odd glass wine on special occasions is horrible when out with the girls xx

[Hidden in reply to Shezza123]

I know, my life changed so much. Nights out with girls are no more, i couldn't keep up with them anymore and didn't enjoy. I do have glass of wine on occasion but less each year. I use to love my nights out, now I'm the boring one 😁 xx

[Shezza123 in reply to Hidden]

I know it’s horrible isn’t it used to love my cocktails with girls and few shots , oh well have to stay positive could be a worse life threatening disease

Xx

[Hidden]

Good morning Shezza123,

Have you been seen by a liver specialist and started on medication? Sometimes people report that it takes several months for their symptoms to improve.

It is also important to have regular review by a liver specialist team who can advise and support you through your symptoms and prescribe medication appropriately.

I have included a link to the British Liver Trust information regarding PBC (primary biliary cholangitis)

britishlivertrust.org.uk/in...

I am sure our lovely forum members will also offer support or you could also contact the PBC foundation

britishlivertrust.org.uk/su...

Best wishes

Trust9

[Shezza123 in reply to Hidden]

Hi yes I have had liver biopsy to confirm it and have started medication , I see a liver specialist but to be honest I m just being given websites to look the condition up ,hence why I have joined this group .. I have only see him once since been diagnosed due to go back end of this month for more blood tests .. I’m just so itchy and tired all the time ..

sherrie x

[Guyb]

Hi Sherrie lots of fresh veg fruit meat and water avoid processed food sugar and salt in time it works “Sherrie darling “

[Shezza123 in reply to Guyb]

Thank you , I do eat healthy but salt I do have quite a bit are you saying this to protect the liver from getting worse ?