Liver not suitable

[Dannythedog]

Hello again

Unfortunately liver not suitable, but hospital has advised we stay tonight incase we get another call.

Just want to thank you all for your kind wishes and comments. Heading back to Belfast tomorrow (unless we get a call) 😊

I have to say from when we got the call at 8 this morning everything happened so fast and smoothly and we arrived at Kings about 2:30pm. (Blue lighted across London)

Anyway goodnight all and fingers crossed for us and everyone else waiting on that call ❤️

Geraldine

[Hidden]

Hi

I'm so sorry the liver wasn't suitable. Let's hope you get another call soon or even better, while you are at the hospital. Take care. Love and hugs to you both Lynne xxxx

[Laura009]

Oh what a shame, but stay positive, your time will come. All the best to you

Laura xx

[alfredthegreat]

Sorry to hear that it didn't go ahead. Hope the next call is very soon. Best wishes. Alf

[ThreeSmiles]

Aww that’s such a shame ☹️. As the others have said let’s hope you get another call soon!

Good luck

Miles

[Smyally]

Aw that’s such a shame. Let’s hope you get another call very soon. Take care xx

[Hidden]

Such a long journey for you both! Safe travel and best wishes for another call soon.

[davianne]

Sorry Danny, I just replied to your first post wishing you luck, and have now just seen your second post. Keep the faith, it will happen, and I hope very soon as you are now on their radar.

All the Best,

David

[Bbsmom]

So so sorry the liver was deemed unsuitable and you are heading back home. I too had a similar experience on 10 Sept and air ambulances from Belfast blue lighted to Kings and then ..boom....back home again. It is a rollercoaster but what I did learn was that, despite my feelings that I would be the ONE who would run into travel issues or something would go wrong, everything that we could control went 100% perfect....except the fact I didn’t get the liver of course, but I am more in awe of the fabulous NHS 5han ever and the amazing care team in the RVH. As Fred says, once the first call comes, ye know things are moving and you could get that real call anytime. Much love and a big warm Belfast hug for your trauma xxxx

[Dannythedog in reply to Bbsmom]

Hello there

Yes the team are great in RVH and also in Kings. The NHS is fantastic and we are so lucky to have it. Are you still waiting/have you had many calls?

Thank you so much for the Belfast hug 🤗 we will keep positive

Geraldine 😊

[Bbsmom in reply to Dannythedog]

Kings are the best in the world, we are blessed to be treated there. Yes, I’m still on the list , I have auto immune PBC and was listed on 30 November last year. I have only had one false alarm on 10 Sept. I fall into that weird category where despite my liver still functioning to a certain degree, I am suffering dreadfully with the associated itch, chronic fatigue and ascites, although I have to say I am lucky compared to some with regard to my symptoms. It’s a waiting game isn’t it, your whole life is consumed by the reality of the situation but knowing we are in the hands of the experts helps a lot.

Feel free to get in touch anytime xx

[Whitelock]

Hi my husband got called 3 times and 3rd time lucky. So don’t get down your time will come. Keeping everything crossed you get a call soon xx

[Dannythedog]

Thank you all so much for your kind wishes, we won’t get too down about it and hope we get another call soon. We had a very exciting day yesterday and experienced so many different emotions, everyone in Belfast Royal and Kings have been amazing.

Kindest regards to you all

Geraldine ❤️

[Jay1948]

I went through same thing, blue lighted up to Kings early on a Friday morning....not a match, but stayed in. I was worryingly ill.... Sunday morning a liver that matched was found!!!. That was nearly 6 years ago and I doing okay. I do understand the emotional rollercoaster ride you are going though. I sincerely hope all goes well for you , knowing Kings I am sure it will.

[Dannythedog in reply to Jay1948]

Thank you, I’m glad to hear your doing well and yes our call will happen 😊