Living hell

[Bubbles201271]

Well my dad has been discharged from hospital. I don’t know how, his ascities is drained but that’s about it well he can walk a few steps so his fine, let alone the complete loss of appetite and now incontience. He has carers 3 times a day, I’m now helping look after my dad which is now like looking after a small child. I look at him now and my heart breaks. Where has my dad gone !!! His now detoxed there’s no way he can get to the shops and I’m not supplying him if he did drink again his liver could pack up any second.

I’ve had to have a day off today otherwise I’m going to end up rocking in a chair somewhere. I can see he will be back in soon., his so weak. You could blow him over with a feather. Alcoholism is a very cruel disease.

Jo X

[Laura009]

So true Jo, it's horrible. Thoughts are with you. Big hug.

Laura xx

[AyrshireK]

Really sorry to hear how poorly Dad is becoming, having read back your previous posts it sounds very like there is very little medically that can be done now other than dealing with the symptoms. Dad might reach the stage or may have already reached the stage where palliative care is becoming necessary. Have you had a read at the British Liver Trust page on end of life care with liver disease, I know it's horrific to start thinking about these things but the page might help with next steps and who to turn to for support in caring for Dad etc. britishlivertrust.org.uk/li...

Best wishes to you, take care of yourself in all this.

Katie

[Bubbles201271 in reply to AyrshireK]

Thank you so much for sharing this, I’m beginning to loose the plot. I didn’t know that there was support to care for people with end stage liver disease. His only having ensure supplements now and he has not got much energy. I was thinking I wonder what happens when his so weak he can’t stand up. I feel totally alone and bewildered with it all. They sent him home from hospital without a care. I know there is no more medically they can do but that doesn’t help me. All they wanted to do was get him out. I have no support network I’m an only child and his lost all his friends through drinking. This really helps thank you xxx

[AyrshireK in reply to Bubbles201271]

Local social work, GP and others should be able to put you in touch with support. As it is likely to be palliative from now on, the hospice network etc. should all be available to you.

Best wishes, Katie

[Hidden in reply to Bubbles201271]

Hi

I would just like to say that you are in my thoughts and prayers , it must be so very hard for you. Sending all my love and hugs to you both. Lynne xxxx

[Bubbles201271 in reply to Hidden]

Thank you so much xxx

[Hidden in reply to Bubbles201271]

You are very welcome. Love and hugs Lynne xxxx

[lyn3]

Thinking of you bubbles as you go through such an aweful situation. How are you this morning? hows your dad? I went through this with hubby last year where he was very thin, unable to stand, toilet accidents all the time,they even thought he had sepsis and even then refused to go into hospital , but he bounced back, he got better, put on weight, the pains in his legs went, he was told how well he looked and yet he continued drinking,madness. I understand how hard it is for you as alot do as well and we are always here for you. sending you loads of hugs..

[Bubbles201271 in reply to lyn3]

Thank you for your message. His still the same not an appetite taking ensure,very weak. Not drinking as can’t get to shops. Don’t think that’s really crossed his mind as feels so poorly. Just taking day by day at the moment. Xxx

[lyn3 in reply to Bubbles201271]

Awe bless your heart... So hard for you..You know what might help,(ive not been there yet ) but been in the situation of a dear friend being close to the end and what helped me and her was me sitting next to her ,holding her hand and telling her how much she is loved, how she had been such an inspiration to me and so many others, how we felt so blessed having each other as friends, just encourging words in such a dark situation. As you said take every day as it comes.. here for you ..

[Hidden]

Good morning,

So sorry to hear your Dad is so unwell. I see our lovley froum members have signposted you to information.

You can also give the helpline a call - it is available Mon-Fri 10am-14.45pm on

0800 652 7330. The trained nurses may be able to guide you through this.

Alternatively, making contact with your Dads GP practice may be useful in getting some support and help for you and your Dad.

take care

Trust9

[Bubbles201271 in reply to Hidden]

Thank you so much. It’s nice to know there is help out there, was just feeling lost and didn’t know where to turn. Thank you for the helpline xxx