I had my gallbladder out in 2014 and I was fine afterwards (usual pains for a fre months). Fast forward to December 2018 and I started with some pain and discomfort similar to my gallbladder pain. I thought it was due to over indulging on the mince pies. Anyway in March this year I was admitted to hospital with terrible pains, burning sensation, stinging, feels like the liver is moving around. They sent me home saying they couldn't find much (at the time they said my bile duct was enlarged). So I've been having pain on and off since March. I finally received my outpatient appointment a few weeks ago and the consultant said my blood liver results were up whilst I was in hospital in march. He wants me to have an MRI and to be put to sleep for a camera down my throat to check my bile ducts.
So friday last week I was in agony, worse than March when I was admitted into hospital. I've been to my GP this morning and I've had more bloods taken and stronger pain relief. I'm feeling dreadful and in pain.
My MRI is booked for august, no date for my genersl anaesthetic to do the camera as of yet.
Im really anxious now. This pain isnt normal and I'm struggling to sleep. I keep going to the mirror expecting jaundice or something.
My mum died of secondary liver cancer when she was 52 and I'm in a panic
Why are tests taking so long, what if there is something bad and I've been waiting months to get diagnosed.
Has anyone else felt this bad?
I'm.seeung my GP in a weeks time to get today's blood results.
Thank you for letting me waffle on
Written by
Outlander12
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Not sure if there's a connection to liver disease or not, maybe pancreatitis? Sorry, I really shouldn't guess. 🤔
Liver disease is actually painless, which isn't very reassuring I'm afraid, or is it??
Hi
I suspect you haven’t had comments because you do seem to be being looked after quite well. Yes we would all like our scans and investigations to happen more quickly but that is the parlous state of the NHS these days unfortunately. I have been having abdominal pains since mid December but it was only agreed about 6 weeks ago to do an MRI scan. I still haven’t been given a date for it though ☹️.
If you are really suffering try ringing 111 or going to 111online. I have used the latter. It tends to be fairly pessimistic I think and will tell you to ring 999 for some things I didn’t expect it to! I have actually only done so once though. But for you it might well be the solution. If you get admitted then you get your procedures done PDQ if they are really necessary.
Whatever you decide good luck.
Miles
• in reply to
Hi Miles
Sorry to read your still having pains in your tum😣😣😣 I still believe the medication I previously mentioned you should have been discussed with your GP as you never know it might helped even in a small way!
Please keep us updated on your date for the MRI pretty please! 😁Hopefully it's not whilst your away having well deserved break/fun/sunshine and sand 😁
Trishi signing off
• in reply to
Trishi
Thanks for that. As I think I said before I am not one for OTC stuff !
Will let you know about MRI but that’s a little way down my priority issuettes list atm...
Miles
• in reply to
Miles
I've never mentioned you going and buying OTC medication. ! I did however suggest you discuss the medication with your GP ! My friend has that same medical condition as you and her hospital prescribed it for her after being admitted on a 999 and was kept into hospital for 2 weeks before being given the OTC medication on prescription!
Maybe I didn't explain my self well enough 🥺🥺!
When friends are in constant pain others do try there best to help that friend out, so sorry if I stood on your toes un intentionally! 😣
Hope whatever your other medical issues are they get sorted soon, and for God sake 😁
Trishi
Hi Outlander
Well! Well! Your symptoms sound like mine!
In 2015 I had my gallbladder successfully removed by keyhole surgery ! This should have happened in 2007 when an earlier ultrasound highlighted the problem! Unfortunately the first scan results went missing...... 😁,it was only when a further scan highlighted my gallbladder was about to throw out mini stones possibly getting pushed into my liver that I received an emergency op! Lol!!!
Anyway in 2017 the pains re occurred under my right ribs, in my back and bile duct region! At that time a routine blood test highlighted possible Primary Bilary Cirrhosis which I've been monitored for over the last 12 months.
I've had an MRI, CT Scan , camera up and down my throat plus monthly blood tests. The only thing that came out of all the above was , I had an inflammed Esophagus after having horrid pains in my bile duct area for months on end which i like you wouldn't let me sleep!
I believe that something was trapped in my bile duct region for those months of pain!' The week before the camera down my throat I drank a can of fizzy ginger ale for the very first time ever! I felt something dislodge and pain relief happen almost immediately from within the bile duct area! Unfortunately the pain then continued to move down through my system which I believe then passed away into the loo! (This took about a week) The following week the inflammed Esophagus was picked up by the camera!
Since these issues began I've lost almost 3 stone in weight which I think had massive effect on my latest blood tests highlighting them to be fairly normal again which I was informed of this afternoon.
I'm still having numerous possible PBC symptoms which I cannot comment on any further other than my hubby knows there real which keeps me sane!
He's the one who scratches my back with a rack when its very itchy😁😁 and he's the one who confirms I'm boiling hot every morning when I have no temperature, and he's the one who brings me food and drink when I'm feeling shattered which can come on totally out of the blue ERRR.
All I can say Outlander is, eat healthy and exercise! Eat no fatty or fried foods! Cheese or creams and your pain may ease a little or completely go away like mine as! However you may have a buildup of crap within your bile duct which can be removed by medication or a minor procedure to remove it!-
Also, I've found that some of my friends who too have had there gallbladder removed, that within 2 years they to have similar symptoms to those if mine!
I'm guessing there re ocuriing symptoms could have been caused by eating badly too since there gallbladder removal.
Take care of yourself and I wish you well! Please keep me updated
Hi there I’m sorry that your in pain.there are some posts I see and I’m like my goodness I feel their pain but I’m hesitant to reply as I haven’t experienced what your going through.but saying that I’ve experienced pain from having a TP and it hasn’t just been were they operated on and the panic kicked in thinking all sorts as we do.only to realise it was par of the course and it passed.i also had my gallbladder out on the same operation for my TP.but I hate to hear that anyone is in pain and I’d give you a big hug if I could.wish you well I really do.paul
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