Still here living w/Cirrhosis - British Liver Trust

British Liver Trust

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Still here living w/Cirrhosis

Liver3
Liver3

I had blood transfusions around 30 yrs was a social drinker never heavy, cured the hep c few years ago 3 w/Epculsa now living with cirrhosis, scary stuff. I recently had my ultra scan scared me I looked over saw my liver now I have night mares seeing it! I had lost weight about 27 pounds but have gained about 7 lbs back trying to lose 20 lbs not easy as I don't seem to have the energy or motivation I did when I lost the weight originally. Only been 6 or 7 months I quit going to gym due to depression along with finance set backs. Waiting to do upper gi for varices. I feel things have gotten worst dont recall my meld score but think it was a 7! I just wanted to let you know I'm here going through similar issues! I hate trying to get answers from doctors they all seem scared to say much. I have plenty to ask. But all in all I pushing along I've noticed my stomach is big never seems to go away! Have been getting waay to much chocolate so I am saying today NO MORE! I don't understand my addiction to sweets it's like I'm a rat.... really get so mad at myself wish I new a better way to break the sweet cravings! Of anyone has suggestions let me know! This Texas girl needs all the help and advise she can get! God Bless all of you I read more.than I post but know I'm here following and cheering you on. Prayers for speedy discoveries of on health cures for each of us!

32 Replies
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Hidden
Hidden

Hello Liver

Welcome (back?)

Not sure I can understand what question (s) you have or what problems the doctors say you have compared say with what you think is wrong?

Please let us know?

Miles

Liver3
Liver3 in reply to Hidden

Nice of you to respond! I don't have any questions, originally I started our responded and decided to just post. It's been a while since I posted just touching base. Saying hello to all and living day by day with the grace God gives!

Hidden
Hidden in reply to Liver3

In that case HELLO 😁 and welcome back indeed Texas girl!

Miles

🇧🇧

Goldfish212
Goldfish212 in reply to Hidden

Oops that reply was meant for liver3. Sorry!

Hidden
Hidden in reply to Goldfish212

Hi

I guessed that! I should have said - Sorry!

Miles

Goldfish212
Goldfish212 in reply to Liver3

Hi. I sent a reply to PiloMilo which was meant for you. Hope you can find it.

Goldfish212
Goldfish212 in reply to Hidden

Hi

There was a recent study that proved drinking three or more cups of coffee per day reduced scarring of the liver. I will try to get the link for you as it was televised (I am in Scotland) but the results were impressive

Hi Liver 3 I completely understand how you feel..I had high expectations when I got cured of Hep c 3yrs ago...I also have cirrhosis and although my virus is gone I still feel exhausted most of the time!

I guess maybe we expected everything to go back to normal but it seems it doesn't happen that way..cirrhosis itself is still there although possibly can get better in time!

I also have a sweet tooth and have struggled with trying to lose a stone or two to get back into shape!..I think it's hard to get motivated when you feel drained of energy most of the time!.

I'm trying to push myself a little harder by cutting out the sugar ect and walking more

Hoping that it will boost my energy levels!

Maybe make a plan to set some goals and try to keep them and it might make you feel better in yourself.

Hidden
Hidden in reply to ballie52

Hello ballie52

I've just read your message and cannot imagine exactly how your feeling but I do know how hard it is to drag yourself onto your feet to do the just a few steps to get motivated!

Can I ask do you have stairs in your home as you dont always have to leave your home to get motivated! You could just put some music on you may like and start with stepping up and down on the first step 10 times then have a wee break then don't again 10 times. If you did this on and off throughout the day you'd be burning of numerous calories!

Hopefully this note does not offend you as I'm not sure of your healths capabilities ! If your fit enough you could maybe pop to your local swimming pool! Lunchtimes are a great time to go as there normally quite until the school hols! Lol!

Your sweet tooth! Do you like spicy foods? I found adding more spicies to yogurts or a spoonful of mint sauce to a low fat yogurt was a great dip for chicken, salmon, carrots or whatever ! This removed the sweet tooth cravings.

I dont mind if you say the above was of no interest!

Good luck Trish

ballie52
ballie52 in reply to Hidden

Hi Trish I'm actually not that bad..I love to walk and can get up and down stairs ect without any problems..for me it's my lack of energy that gets in the way! ..I'm constantly feeling exhausted all the time and although I can manage to get up and get things done it's so difficult with the way just simple tasks make me feel completely exhausted in a short space of time!

And yes I love spices and use a lot in my cooking..I would be fine if I could just get over this lack of energy..but thankfully at least I no longer have Hep c

Thanks Trish for your helpful advice!

PS Trish i still try and get out and about despite my lack of energy..my little dog motivates me Lol Xx

Hidden
Hidden in reply to ballie52

Good morning ballie52

Thank you for your reply ! It's nice to know that your still able to take walks with your we dog who I bet looks forward to that lovely treat with you! Sorry about your lack of energy which I know can be debilitating!,

Please take care and look after yourself the best you can!

Love Trish

Hidden
Hidden in reply to Hidden

I know you’re doing it deliberately now Trish 😁 but I’ll keep reminding you deliberately as well

“wee - small” From “Glossary of Scottish slang and jargon”.

We = us from “Miles” 😁

Hidden
Hidden in reply to Hidden

Well we are a feisty teacher this morning 😁 pick on Trishi or was Trish!

I'm not about to change who I am 'Errors' and all' 😊

Sorry if I sound feisty too as I'm not myself today! It's nothing to do with personal stuff !

😣

Hidden
Hidden in reply to Hidden

Errr OK. I was just giving you a we bit of advice. No no no not advice I’m not allowed to do that 😁 and when would I ever do that anyways....

Hidden
Hidden in reply to Hidden

Sorry ...... didnt mean to sound errr... you know it's not me! My symptoms have kicked have off again! Blummin itchy skin, pains in legs and arms, tummy ache plus other things which are slightly new!😣 glowing which I never had ! Errrrr

Trishi

Hidden
Hidden in reply to Hidden

All , I'm ok as just arrived at gym to strength my legs for jump! 😁😊😊😊

Hidden
Hidden in reply to Hidden

I'm awake now after hitting water 😁

so I'm now ready to give back as much as you all/ fiesty teach wants to throw at me! 😉😉😉 joking...

Unfortunately I'm a cancerian 'The Crab' who likes water and she likes to get her claws dug into the sand🤣🤣🤣 too .... !

Revisiting Turkey again in September for more kayaking etc as hotel changing hands to Germans owners! 😣😣!

Hidden
Hidden in reply to Hidden

Aw lovely! Post some piccies of parasailing! Or maybe fund raise 😀Or maybe not coz others will know you’ve done parasailing before which is nothing like as awesome as skydiving. Here speaks a man who has NO experience of either 😀

Miles

Hidden
Hidden in reply to Hidden

You took the words right out of my mouth just as I read your last paragraph! Spooky ......

Currently sorting fund raising link out which is causing a slight problem as I want to raise funds for two causes! May have to use Virgin as I'm informed they will split the funds raised. 😁

For some reason youve just reminded me of a lovely friend of mine who has a holiday/birthday coming up soon ! I must remember to be the first to send a Happy Birthday Wish ahead as I do try my best not to forget any friends on FB!

Oh well 45 mins biked so far 😁with more to do 🤣🤣🤣🤣🤣 then back home as visitor arriving from York !

Hope your all still enjoying the lovely weather and enjoying walking your dogs Teddy, Freddy , Rusty, Juicy Lucy ........😁

Hidden
Hidden in reply to Hidden

I'm joining your Teddy, Freddy and Rusty club 😂 We now have a Henry, who's a beautiful black 7month old Cocka Poo who 's coming to stay with Rock Chick for his hols 😅😅😅! He's totally adorable !

Nighty nite lads !

Hidden
Hidden in reply to Hidden

Will post photos on FB which is now a public site for Pet business too under Trish Harris-McNee 😊 !

Maybe I should take up flying next??? 🤔🤔🤔however would have to rob a bank first!

ballie52
ballie52 in reply to Hidden

Well Trish with me being a fellow Scot I use the word wee in most of my banter Lol

Sorry to hear that you are going through a hard time with all your symptoms!

Getting exercise and trying to eat healthy definitely makes a difference in your overall health..good for you getting on your bike..I need to buy one as a few yrs back I loved going out on my bike.

I'm a Glasgow lass that has lived in Egypt for many years but been Also in London for the last 5yrs! But never can get the word wee out of my vocabulary Lol

Take careX

Hidden
Hidden in reply to ballie52

Hi wee lass! I was married to scotsman from Paisley for 23 years and lived in Peterhead for 5 of them so I know all about weeeee! Lol

All his relatives lives in Renfrew, Govan and Ayr!

I used to work in the London area for 5 years too so I know it fairly well in away ! Drove around many time! Are you still there???

I split my biking between the gym and biking around the country lanes at night time or early in the summer mornings!

Oh well less of the babbling otherwise people will be moaning ERRR

Bye .....😊

ballie52
ballie52 in reply to Hidden

Hi Trish No I haven't lived in Scotland for over 30yrs..I still go up to vist my mum and the rest of my family!

I'm sure I'm familiar with some of your posts! I used the site on and off for the last 4yrs and found it a great source of information as well as support for people that go through liver disease .

I still recognise some of the same people that have been posting support on this site for many years and feel we are all grateful for having a forum that understands the issues we can come across in this journey!

Thanks for you and all the others that take the time to respond to the insecurities and problems we can go through with a liver condition.

Xx

Hello again!

I'm glad you posted this. I'm sure you will find that you are not the lone ranger! When I read you're a Texas girl, I knew you were tough lol. Don't mess with Texas, amiright?! 💪😁❤️

You got that right! hope all is going well on your end. 1 thing for sure were survivors Fighting the fight

I feel blessed, I feel good most of the time never.think I'm sick. Not the case with many others! Reading your post how was the varices surgery? I feel sure I find out soon! Does it keep coming back?

Bootandall
Bootandall in reply to Liver3

Hey girl,

I'm not sure if you meant me, but I did not have varices surgery. I have mild varices (grade 0? grade 1?) and portal hypertensive gastropathy, which can lead to possible varices on the top of the stomach. So I'm on a beta blocker so hopefully they don't bleed. This medication slows down your heart rate and blood flow. My gp told me that assassins take them before a hit so they can control their reflexes better. Somehow that appealed to me lol. 😛😀

Liver3
Liver3 in reply to Bootandall

Thanks for the update and correction. Who knows what I was reading it's usually very late when I get on line. Thanks again, I'll know more July 24th going to see Dr. Later, from Texas.

Its July 4th fireworks going and fur babies are a little.nervous to say the least calling it a night!

Hidden
Hidden in reply to Liver3

Great to read your fighting the fight! I'm still fighting too but in two different ways!

I'm still in the early stages of possible PBC and yesterday/today has been a slightly crap start to my day with re ocurring symptoms which are logged for GP and consultant next visit. Further blood tests are on the monthly programme!

My second fight is to raise funds for 2 causes and I'm shite scared of heights 😉😉😉! So this I could say is my 3rd fight!!!

Take care my friend! I'm doing my best now in case things go south later!

Love to you all 😊😊😊😊

Hidden
Hidden

Hello Texas Girl

I'm lost for words as my babbling correspondence below was not helping you in any way which I apoligies for! Somehow I thought I was replying to some going banter re sky dive!

Firstly your a stronger person than you think you are!!! Please let this comment sink in!!! To loose 27lbs is totally awesome! The 7lb gained is not that bad as youve already proved you have the stammer to do it again, especially with my banter giving you the boost you need! 🤣🤣🤣🤣🤣.

I know depression and financial issues can make it tough to drag yourself out of this horrid rut! I'm an expert on finding ways to financially survive as I had to do just that for 8 years! I did cry at times but with two kids you fight for them!

I'm still trying to loose another 14 lbs which is slow going 😣 but if you want to join me in our (wee) fight PM and we can have a chat about replacing the chocolate with something else or just eating less in different ways as I'm great at think up foodie ideas which we could work around your health issues ! I'm no expert in this area of food but try to think up food ideas that may make your mouth water or ting a little !,

Take care my friend and maybe hear from you again Texas Girl!

Love Trish xxx

Liver3
Liver3 in reply to Hidden

Loved it thank you! I'm pushing myself again. Getting back on that band wagon for sure. Yes 27/lbs was good seemed so much easier than mow 7 months since I hit the work-out world. But I know I can do it again a d stay with it. Meet some girls today considering weight loss surgery, not an option for me! Wish them luck... thanks for being there.

I don't think you want that surgery, my guess is it would really be a nightmare with portal hypertension, but as in all things medical, they would weigh the pros and cons.

I'm starting to get out a little more, and park farther away so I have to walk.

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