Forgot how reliving it was to get a di... - British Liver Trust

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Forgot how reliving it was to get a diagnosis

jojokarak profile image
jojokarak
β€’31 Replies

Nothing liver related thank god 😁

But from the day I could walk, my knees used to dislocate and it still happens to this day.. Anyway doctors told my parents I would grow out of it...... Had an operation ten years ago where they took some cartilage out and said that would cure it πŸ˜‚πŸ˜‚

I have been getting a lot of pain recently in my knees so got referred to an orthopedic surgeon and one mri scan and one x-ray I finally got a diagnosis it's called trochlear dysplasia it's a genetic condition, nothing can be done but it just felt good to finally find out 🀣

Hope your all well ☺️

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jojokarak profile image
jojokarak
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31 Replies
β€’

My goodness jojo - hope that’s the end of all the problems you’ve go to tell us about ☹️. Very sorry to hear but as you say you have at last found out what the real problem is.

Hope you’re coping OK πŸ‘

Miles

jojokarak profile image
jojokarakβ€’ in reply to

I good my dear 😊 I don't know any different with my knees it's just me x

I am glad for my parents because they fought for my whole childhood with doctors about it so to tell them I finally got an answer was the best x

alfredthegreat profile image
alfredthegreatβ€’ in reply tojojokarak

Crikey jojo, that took them long enough Didn't it? Suppose at least you have a name for it now. Did taking some of the cartilage out do any good? Hope so :-)

jojokarak profile image
jojokarakβ€’ in reply toalfredthegreat

It was a long time but nothing unusual for me πŸ˜‚ πŸ˜‚ πŸ˜‚

And it did for a while but I think it may have been more of a placebo effect

alfredthegreat profile image
alfredthegreatβ€’ in reply tojojokarak

I've got the opposite and could do with some cartilage. If they take any more out think of me, LOL :-) :-)

jojokarak profile image
jojokarakβ€’ in reply toalfredthegreat

πŸ˜‚ πŸ˜‚ πŸ˜‚ You on the knee replacement road? You will have to fill me in if you do, as I will need one 🀣🀣 I find it hilarious I think my nickname going to be bionic soon enough 🀣🀣

alfredthegreat profile image
alfredthegreatβ€’ in reply tojojokarak

Diagnosed with Osteoarthritis in left knee and hips and lower back a couple of weeks ago. The 3 spinal fractures just weren't enough :-) :-) Left knee has been giving me pain for getting on a couple of months so I guess it's early days for me as regards an op. Oh such joy!!

alfredthegreat profile image
alfredthegreatβ€’ in reply toalfredthegreat

Be interesting to see how many new bits a body can take :-)

Bootandall profile image
Bootandallβ€’ in reply toalfredthegreat

I heard if you're very active, or very committed to being active, it works better than for someone who is sedentary. Of course some of us might be sedentary due to pain from the degenerative changes to the joints. I'm sure it's like anything else, you must push yourself to achieve the best outcome.

Sorry JoJo ☹️ you have had to endure so much!

😘 Vee

alfredthegreat profile image
alfredthegreatβ€’ in reply toBootandall

I try to do what I can but I I'm beginning to realise my limitations and in the event when I don't realise my wife soon lets me know :-( :-(

jojokarak profile image
jojokarakβ€’ in reply toalfredthegreat

πŸ˜‚ πŸ˜‚ πŸ˜‚ I know let's see we still got time

β€’ in reply toalfredthegreat

😱 xx

β€’ in reply toalfredthegreat

Alf, take care of all those painful rickety bits and I'll keep my fingers crossed they'll get sorted soon!

Trish

alfredthegreat profile image
alfredthegreatβ€’ in reply to

Thanks Trish. Where there's a will there's a way :-) :-)

β€’ in reply toalfredthegreat

I know you can do it AlfπŸ€—πŸ€—πŸ€—

davianne profile image
davianneβ€’ in reply toalfredthegreat

Oh Alf, sorry to hear of your Osteoarthritis, I know it's damn painful. How us old codgers suffer with our mechanical failures. Hundreds of years ago when life expectancy was 35-45 years, it wasn't a problem, 'cause we popped our clogs before anything wore out, except maybe our teeth 🀣🀣🀣 I have had a trapped sciatic nerve ( old rugby injury) for nearly 50 years, arthritic knees and hips. chiropractor didn't cure the nerve problem, Orthopedic surgeon (a friend) said a new knee joint would only last 10 or so years, so felt my knee joint replacement should wait a while, until it gets debilitating. ( some friendπŸ‘ΏπŸ‘Ώ )

David

alfredthegreat profile image
alfredthegreatβ€’ in reply todavianne

Hi David. Trapped sciatic nerve all those years is not good :-( True what you say about the life expectancy years ago. Things like Osteoarthritis would probably be as rare as hens teeth! :-) I find myself echoing what my parents used to say when they bought a new piece of furniture or a new carpet "Well this will see me out!" LOL. I'll probably be looking at new joints in that same way now :-) :-)

davianne profile image
davianneβ€’ in reply toalfredthegreat

Yes Alf, we are living too long , the system can't afford us now.😊😊 I'm just waiting for some bright spark from government to think of a voluntary euthanasia scheme to reduce the financial pressure, although I don't know what incentive they could offer to get takers 😁😁 I am debating whether or not to keep my car, as I only do 2000 miles a year, so if i keep it, it will see me out 🀣🀣🀣 My wife always says your not old until your 85, so I might die young yet 🀣🀣 Nearly forgot to say , my trapped nerve is not constant, but just a twist or stooping down can set it off.

David

alfredthegreat profile image
alfredthegreatβ€’ in reply todavianne

Hi David. Glad you get some respite from that trapped nerve! We each used to have a car but as I had to retire 6 months early and my wife was the one looking after me, we went down to one car. Most of the mileage has been to scans, appointments etc. Hopefully some of the mileage in the future will be down to days out and holidays :-) I can't think what that incentive would be either. Whatever, it wouldn't be much good to us :-( LOL. Alf

Bootandall profile image
Bootandallβ€’ in reply tojojokarak

You can be the next superhero! 😘

alfredthegreat profile image
alfredthegreatβ€’ in reply toBootandall

I think jojo already is. She ought to get an award for endurance!!

β€’ in reply toalfredthegreat

Hi

I agree with you. I really feel for you, the pain must be terrible. Take care Lynne

Hi JoJo

Just a we hug from me as I cannot add anything more to what others have already said!

Take care of that knee

❀

jojokarak profile image
jojokarakβ€’ in reply to

Thanks hunni 😘

β€’ in reply tojojokarak

Hi JoJo

You've been through so much, you are fantastic. Love and hugs Lynne xxxx

Shyandretiring profile image
Shyandretiring

Glad for you Jojokarak.

Great attitude !

Kind regards

Pete

davianne profile image
davianne

Hi Jojo, It's Great news that you finally have a diagnosis, but not good that there is no cure for it. Is the pain you get a bone pain, nerve pain or muscular pain. I get all of these, and have found that a heat pad, followed by an ice pack gives relief for bone pain, as there are limited painkillers we can take. I also use a Tens machine which is good for muscle/nerve related pain. Hope this helps,

David

jojokarak profile image
jojokarakβ€’ in reply todavianne

Because my knees dislocate its all over the pain I am used to it so don't use any pain meds for it 😊

I have a stick when my knees are feeling weak to take the pressure off x

davianne profile image
davianneβ€’ in reply tojojokarak

Oh dear Jojo, that's terrible, to have to live with that condition must be a nightmare for you. My son had an accident on his mountain bike 20 years ago, and had to have his knee reconstructed. He is still in pain with it, and it dislocates occasionally.

I know your a fighter, but I'll say it anyway....Keep your chin up.

David

jojokarak profile image
jojokarakβ€’ in reply todavianne

That sounds nasty!! Poor guy I think that's why I glad I not had major surgery on my knees to many fiddly bits in there x

Good news x

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