Hello

[3338melton]

Hi I would like to share my experience I am 32 have been diagnosed with end stage liver disease. It all started as dealing wwhsocial phobia 18 years ago and thought I was invincible no matter what I was told . it all went downhill 2years ago so quick I deteriorated at least 12 asitic taps I must say this forum non judge metall I am sharing my experience. About 3 months ago I found my self unable to breathe in and out of bed and not being able to even take care of myself I do not wish upon anybody . I've had the right lung cavity drained 7 times the least amount being 4 litres I don't know how long I have left I have such good people around me that is the hardest part knowing how much I'm hurting them the guilt of it all is to much especially how much I am a burden on a already overloaded health system they are the nicest people I've ever met I am not looking for sympathy I just want to share . I had the t.i.p.s procedure done 3 weeks ago its feeling good being able to move about its the longest I haven't had to go back to hospital in about a year . during a out patient asitic tap they called a code blue complete white out of the lungs that was the first plural fusion. Does anybody have a opinion on how long I might have. Thanks not enough room full story

[Gordon99]

You should not feel guilt. Let the good people around you help, I’m sure they will not consider you a burden. Stay positive. This will help you and encourage the good people around you. I had been very sick and was an hour away from being rejected for surgery when I was lucky enough to have a liver made available. I know that it is easy to say but never give up hope. Good luck.

[GrandmaDylan]

I can't advise you sorry. But try not to feel guilty about how you got here. Everyone makes mistakes in life but not everyone is made to suffer. I really feel for you and hope that you have friends and family to support you. I hope things don't turn out as badly as you are expecting. Where there's life, there's hope.💐💓

[Beauport]

You are most definitely not a burden. Alcoholism is not a lifestyle choice it's an illness like any other.

We're not medically qualified on here so can't give you a prognosis. But I can tell you that there are many people on here who have literally been at death's door and yet pulled through. So there is always hope. And remember, NO-ONE knows how long they will live, not even the seemingly fit and well: after all, no-one gets out of here alive!

Stay in touch and let us know how you're doing.

Carole 😊

[Hidden]

No one knows how long any of us are going to live. Just live life to the full, welcome and embrace every new day and be thankful for the love and care you receive. That's all any of us young or old, fit and healthy or sick and challenged can do be cool😎keep smiling 😆

Xx

[Sydney04]

Reading your story is heart breaking as the other replies state we are not medical professionals but what I can say to you is you need to let go of the guilt you are burdening yourself with. You have an awful addiction that grasped you at a very early age and gave you the invincible feeling and confidence you may have wished for at the time as it may have temporarily helped with your social phobia.

Your family sound very supportive so please don't view yourself as a burden - they want you to stay with them as long as possible so do everything in your power to try and make this happen. As one of the responses stated some of the people on this forum have had an extremely grim prognosis but they're still alive and here today years later. Don't look at your illness with a 'how long do I have left' outlook look at this with a 'what can I do to move from my current state to improve my quality of life and overall health and make those that have stood by me proud?'

Get all the medical advice you can, post on here as often as you like and form a plan to work towards a new life. You're only 32 - you have so much more of life to experience - don't give up now, you deserve to have a happy and fulfilling life.

Wishing you all the best and I would be delighted if you could keep us up to date with your progress X

[Mavis66]

Hope things improve for you, but i am glad i seen this post as i will get it in time to come and will follow your journey as well

[Loopyloo01]

Hi please don't push your friends away, they want to help in any way they can, so let them. You are not a burden to any one, so stay positive. No one is perfect and no one knows what you are going through, they are trying to understand and you need to talk to them , honestly you are only human and this illness is winning at the moment as you are letting it, so here's a kick up the backside ……………………….stay positive as we would like to know how you are getting on.